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Check out www.CFLF.org they provide recreation grants as an incentive for CF patients to exercise and Live Stronger, Live Longer. There is also a documentary film at www.livingxtreme.org that features CF Patients of various ages doing amazing and extreme recreation/exercise activities. I am...

I am 67 years old, was diagnosed at age 64. Lost a sister to CF over 40 years ago. I always had lung problems, bronchitis, pneumonia even had scarlet fever. I was advised that I was likely a carrier with symptoms but sweat test never positive for CF. I got by with oral antibiotics and exercise...

Check out www.livingxtreme.org This is an action packed filmed about youth and adults LivingXtreme with CF. It will inspire!

I have had hoarseness with both Tobi and Cayston. I was advised by a pharmacist to gargle with Liquid Benadryl after each use. I find that this works for me. I use it at least for the first 10 days or so of either Tobi or Cayston and no hoarseness. I use either a generic or Benadryl brand...

Dr. Belkin is great. He is why I am still here. I just had my 67th birthday. Healthier now than I have been in many years. I am also very active. Swimming laps is what kept me going for years, without any of the CF treatments. Now with the CF treatments I am doing well. No pneumonia in 2.5...

USC - Go Trojans! is a well known CF Center. Also I think it is Long Beach Memorial Hospital has one.

I was finally diagnosed at 64 and this was a good thing. I lost a sister to CF 40 years ago and knew I was a likely carrier. I had lung problems all my life but could not convince pulmonologists that if might be CF, not just bronchiectasis. Lungs got worse as I aged and suffered lung damage...

Age 66 FEV 48-50%. Swimming laps for 30 + years has helped.

A short 5 min. documentary film about active CF patients can be viewed at www.livingxtreme.org. The HD Film is still in process. It will take your breath away.

I could not take the burning of the throat with 7% Hypersal either. The doctor reduced it to 3% and I am good with that. use it daily and it does work to clear up the mucus. I have gotten used to it and no sore throat or hoarseness. BJM

I am in the club too. Nasty cuts. I find as others have written, a folded paper towel to grab the cap and pull it off and turn works the best. It is a good drug but I dislike the 3X a day routine. Since it is such a tiny amount you would think you could increase the dose and just do it 2x a...

I am in the club too. Nasty cuts. I find as others have written, a folded paper towel to grab the cap and pull it off and turn works the best. It is a good drug but I dislike the 3X a day routine. Since it is such a tiny amount you would think you could increase the dose and just do it 2x a...

I was diagnosed at age 64 in 2010. I lost a sister to CF - 40 years ago. She died at 21 years old. Way back then my sweat test was normal. I have battled lung infections, pneumonia, bronchiectasis for decades. The best I could get from many docs and pulmonologists was that I was probably a...

I was diagnosed at age 64 in 2010. I lost a sister to CF - 40 years ago. She died at 21 years old. Way back then my sweat test was normal. I have battled lung infections, pneumonia, bronchiectasis for decades. The best I could get from many docs and pulmonologists was that I was probably a...

I am 65 years old. Officially diagnosed at 64 in 2010. FEV hovers around 60%. Sister died from CF at age 21 over 40 yeas ago. Always figured I was a carrier with symptoms as I suffered from lung problems. BMH

I am 65 years old. Officially diagnosed at 64 in 2010. FEV hovers around 60%. Sister died from CF at age 21 over 40 yeas ago. Always figured I was a carrier with symptoms as I suffered from lung problems. BMH

I am 65 years old. Officially diagnosed at 64 in 2010. FEV hovers around 60%. <br />Sister died from CF at age 21 over 40 yeas ago. Always figured I was a carrier with symptoms as I suffered from lung problems. <br />BMH

I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine. My sister died at age 21 from CF 40 years...

I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine. My sister died at age 21 from CF 40 years...

I am still here at age 65 because I have been swimming laps 3x a week (about 40 min.) for 35 years. I was only officially diagnosed with CF last year. Amazing what exercise can do along with a good pulmonologist and what genetic testing can determine. <br />My sister died at age 21 from CF 40...