Search results

  1. A

    Anyone use a maid?

    We have used a couple of different cleaning services. I currently have someone in our home 15 hrs/week to clean and do laundry. Both my husband and I work. We used a company prior to hiring Natalie that was good and used organic products--maid brigade. No overwhelming and irritating chemical...
  2. A

    Delta f508 with 5t?

    Adam was not diagnosed until this past February---at age 14!!! He started to have severe gastro problems last August--lost 15 lbs and became very weak. No one thought to check for CF because of his age. After the genetic sequencing came back, he started on enzymes right away. He has improved...
  3. A

    Delta f508 with 5t?

    Adam was not diagnosed until this past February---at age 14!!! He started to have severe gastro problems last August--lost 15 lbs and became very weak. No one thought to check for CF because of his age. After the genetic sequencing came back, he started on enzymes right away. He has improved...
  4. A

    Delta f508 with 5t?

    Adam was not diagnosed until this past February---at age 14!!! He started to have severe gastro problems last August--lost 15 lbs and became very weak. No one thought to check for CF because of his age. After the genetic sequencing came back, he started on enzymes right away. He has improved...
  5. A

    More enzyme issues

    My cousin's son, who is a little order, takes his"crunchies" (that's what they call the enzymes on his tongue; that is, his parents open up the capsule and drop the pellets right on his tongue. Never saw this before, but he is majorly pancreatic insufficient and it works for them.
  6. A

    More enzyme issues

    My cousin's son, who is a little order, takes his"crunchies" (that's what they call the enzymes on his tongue; that is, his parents open up the capsule and drop the pellets right on his tongue. Never saw this before, but he is majorly pancreatic insufficient and it works for them.
  7. A

    More enzyme issues

    My cousin's son, who is a little order, takes his"crunchies" (that's what they call the enzymes on his tongue; that is, his parents open up the capsule and drop the pellets right on his tongue. Never saw this before, but he is majorly pancreatic insufficient and it works for them.
  8. A

    Delta f508 with 5t?

    One of my son's mutations is a 5T variant. It says right on his genetic report that 5T variants have been shown to be asymptomatic, mildly symptomatic, or typical CF. The diagnosis of CF is truly a clinical decision, not only a genetic one. My son's results said "cannot rule out CF." One...
  9. A

    Delta f508 with 5t?

    One of my son's mutations is a 5T variant. It says right on his genetic report that 5T variants have been shown to be asymptomatic, mildly symptomatic, or typical CF. The diagnosis of CF is truly a clinical decision, not only a genetic one. My son's results said "cannot rule out CF." One...
  10. A

    Delta f508 with 5t?

    One of my son's mutations is a 5T variant. It says right on his genetic report that 5T variants have been shown to be asymptomatic, mildly symptomatic, or typical CF. The diagnosis of CF is truly a clinical decision, not only a genetic one. My son's results said "cannot rule out CF." One...
  11. A

    throat culture vs sputum culture

    Being relatively new to the CF world with my son being dx in Feb., just wondering what the difference is btw a throat culture and sputum culture? Or are they two ways of getting the same information?
  12. A

    throat culture vs sputum culture

    Being relatively new to the CF world with my son being dx in Feb., just wondering what the difference is btw a throat culture and sputum culture? Or are they two ways of getting the same information?
  13. A

    throat culture vs sputum culture

    Being relatively new to the CF world with my son being dx in Feb., just wondering what the difference is btw a throat culture and sputum culture? Or are they two ways of getting the same information?
  14. A

    Connor's video

    If you haven't viewed it yet, Sarah posted the most amazing, heart-wrenching beautiful video on her blog, <a target=_blank class=ftalternatingbarlinklarge href="http://notsobrightandshiny.blogspot.com/ ">http://notsobrightandshiny.blogspot.com/ </a> Words are insufficient...............
  15. A

    Connor's video

    If you haven't viewed it yet, Sarah posted the most amazing, heart-wrenching beautiful video on her blog, <a target=_blank class=ftalternatingbarlinklarge href="http://notsobrightandshiny.blogspot.com/ ">http://notsobrightandshiny.blogspot.com/ </a> Words are insufficient...............
  16. A

    Connor's video

    If you haven't viewed it yet, Sarah posted the most amazing, heart-wrenching beautiful video on her blog, <a target=_blank class=ftalternatingbarlinklarge href="http://notsobrightandshiny.blogspot.com/ ">http://notsobrightandshiny.blogspot.com/ </a> Words are insufficient...............
  17. A

    Connor's video

    If you haven't viewed it yet, Sarah posted the most amazing, heart-wrenching beautiful video on her blog, <a target=_blank class=ftalternatingbarlinklarge href="http://notsobrightandshiny.blogspot.com/ ">http://notsobrightandshiny.blogspot.com/ </a> Words are insufficient...............
  18. A

    Connor's video

    If you haven't viewed it yet, Sarah posted the most amazing, heart-wrenching beautiful video on her blog, <a target=_blank class=ftalternatingbarlinklarge href="http://notsobrightandshiny.blogspot.com/ ">http://notsobrightandshiny.blogspot.com/ </a><br /> <br />Words are insufficient...............
  19. A

    How do you know it is time for a vest?

    Based on something Hillary said, I am curios what others think. My son--14 years old and only recently diagnosed--does not use a vest. Our instructions were to do CPT when he has a cold. His recent PFT was 80%. They have been pretty consistently in the high 70s, low 80s since we started doing...
  20. A

    How do you know it is time for a vest?

    Based on something Hillary said, I am curios what others think. My son--14 years old and only recently diagnosed--does not use a vest. Our instructions were to do CPT when he has a cold. His recent PFT was 80%. They have been pretty consistently in the high 70s, low 80s since we started doing...
Top