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Hi All--I had a nice conversation with Dr. Mogayzel today. He summarized Adam's test results. We go next week for a follow-up and a more detailed discussion. His sweat test came back borderline again--46. As for the NPD, I do not have the actual report yet, by his baseline was normal but the...

Hi All--I had a nice conversation with Dr. Mogayzel today. He summarized Adam's test results. We go next week for a follow-up and a more detailed discussion. His sweat test came back borderline again--46. As for the NPD, I do not have the actual report yet, by his baseline was normal but the...

Hi All--I had a nice conversation with Dr. Mogayzel today. He summarized Adam's test results. We go next week for a follow-up and a more detailed discussion. His sweat test came back borderline again--46. As for the NPD, I do not have the actual report yet, by his baseline was normal but the...

Just curious--DS has Gilbert's Syndrome. His pediatrician mentioned it last year; Hopkins confirmed. Anyone else's child have this along with CF. It is chronically elevated bilirubin and has a hereditary component.

Just curious--DS has Gilbert's Syndrome. His pediatrician mentioned it last year; Hopkins confirmed. Anyone else's child have this along with CF. It is chronically elevated bilirubin and has a hereditary component.

Just curious--DS has Gilbert's Syndrome. His pediatrician mentioned it last year; Hopkins confirmed. Anyone else's child have this along with CF. It is chronically elevated bilirubin and has a hereditary component.

Hi all--I know in the past someone posted how to de-cipher NPD results. I searched but cannot find it. DS has another sweat test, first CT scan of lungs and sinuses, and an NPD today at Hopkins. If anyone has info on the NPD, I would appreciate it. Thanks from icy PA

Hi all--I know in the past someone posted how to de-cipher NPD results. I searched but cannot find it. DS has another sweat test, first CT scan of lungs and sinuses, and an NPD today at Hopkins. If anyone has info on the NPD, I would appreciate it. Thanks from icy PA

Hi all--I know in the past someone posted how to de-cipher NPD results. I searched but cannot find it. DS has another sweat test, first CT scan of lungs and sinuses, and an NPD today at Hopkins. If anyone has info on the NPD, I would appreciate it. <br /> <br />Thanks from icy PA

Mmmm...my son's bottles are usually about 3/4 or more full. Maybe they use only one bottle size for all the different strengths. My son's are 20s. Maybe they put a pre-determined # in each bottle despite the size???

Mmmm...my son's bottles are usually about 3/4 or more full. Maybe they use only one bottle size for all the different strengths. My son's are 20s. Maybe they put a pre-determined # in each bottle despite the size???

Mmmm...my son's bottles are usually about 3/4 or more full. Maybe they use only one bottle size for all the different strengths. My son's are 20s. Maybe they put a pre-determined # in each bottle despite the size???

We always get ours within a day or two. My son said that the zenpep website does not work correctly if you use mozilla firefox as your browser--he had trouble getting his reward order placed. Once he switched to the other browser it went through.

We always get ours within a day or two. My son said that the zenpep website does not work correctly if you use mozilla firefox as your browser--he had trouble getting his reward order placed. Once he switched to the other browser it went through.

We always get ours within a day or two. My son said that the zenpep website does not work correctly if you use mozilla firefox as your browser--he had trouble getting his reward order placed. Once he switched to the other browser it went through.

Hi all--Adam had his first visit to Johns Hopkins yesterday. It was a great appt. We were going for three main reasons: (1) CHOP said no CF; Children's Nat'l said CF. His mutations are supposed to non-symptomatic and his only sweat test was borderline. Zenpep has helped him tremendously...

Hi all--Adam had his first visit to Johns Hopkins yesterday. It was a great appt. We were going for three main reasons: (1) CHOP said no CF; Children's Nat'l said CF. His mutations are supposed to non-symptomatic and his only sweat test was borderline. Zenpep has helped him tremendously...

Hi all--Adam had his first visit to Johns Hopkins yesterday. It was a great appt. We were going for three main reasons: (1) CHOP said no CF; Children's Nat'l said CF. His mutations are supposed to non-symptomatic and his only sweat test was borderline. Zenpep has helped him tremendously...

Hi--Is your daughter a new patient? We are going to JH for the first time this Wednesday. My understanding is that all new patients see the CF clinic director--Dr. Mogayzel (sp?) and that they only do new patient appts. on Wednesdays. If this is not your situation..............then I agree...

Hi--Is your daughter a new patient? We are going to JH for the first time this Wednesday. My understanding is that all new patients see the CF clinic director--Dr. Mogayzel (sp?) and that they only do new patient appts. on Wednesdays. If this is not your situation..............then I agree...