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  1. R

    Has Anyone Ever Tried A Saltwater Mist?

    I'm glad I saw this post. On the news this morning they ran the crawler along the bottom of the screen saying: "Studies: Salt water mist found to relieve cystic fibrosis symptoms..." and that was it. Must be what you guys are talking about. I got this email from our Foundation person today...
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    Throwing my hat into the ring... thanks to our good friend WinAce

    Welcome Jim. Allan will forever live on with so many people. It amazes me that you came across him through technology, without knowing him and feel about him the way so many of people felt about him while he was still with us. I believe in fate on different levels, but there is a reason you came...
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    Dance

    LOL Melissa
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    ??? about someones photo posted

    Yeah, the faster the better. Ours is just a little aluminum boat, so it's not as steady as we'd like it to be. If I haven't flipped it, I'm sure the kids won't!! They're always chanting...faster....faster...or stop! there's the beach!!!! LOL
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    ??? about someones photo posted

    He was driving our boat and lovin it!!!!! He's a natural. Can't wait for summer again!
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    ??? about someones photo posted

    I'm Shelly...Cale's Mom. He's the "Little Driver" in the picture. And hopefully Sean meant thongs as in flip flops...hehe...
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    trampoline

    I got one for Cale last year at Walmart...online. I imagine they would have them in the store. If all else fails, ask them to order you one in. He enjoyed it, but was too little for it at the time. I held his hands and jumped with him. Guess it is time to get it out of the storage room and try...
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    How Far do I Push?

    Paige, as everyone has said...PUSH! I bothered our regular pediatrician weekly when Cale wasn't thriving. His BM's were so abnormal. They really thought I was overreacting. I pushed for a 2nd opinion at Cale's 12 month checkup and I could literally see the lightbulb above the ped. head. He left...
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    Remembering......

    I'd like to remember my aunt Beth who just passed away, Jan 2nd this year from a massive heart attack. It was so sudden. She loved my Cale like her own Grandson, so memorials are being sent to the CF Foundation in her memory. She is finally at peace with the daughter she lost years ago. Irony...
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    HERE WE GO---UPDATED AND SAD :(

    Julie and Mark... I am so sorry you are dealing with this. It is so much harder when you're 'pressed' for time. I have no advice in dealing with the military. It is a whole other world I'm sure. Just take care and stay strong. Prayers are with you!
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    WELCOME HOME Ashton!!

    Christi, so glad to hear Ashton is home! I can't help you with the meds, because Cale loves his. He even reminds me if I forget one of them. He's on ADEKs, (loves them?) Zantac and Ursidiol. He takes them like a pro and always has. I am very fortunate he is such a good patient. He just got the...
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    hospice care

    My family has dealt with hospice for the care of cancer patients in the last stages of life. They were very compassionate and caring. It took a lot of pressure off of family and gave them much needed breaks. Our thoughts are with you and your son and family at this time.
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    HERE WE GO :)!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Julie, it sounds like everything is falling in place!!!!! YEAH!!!!! I am so excited for you guys and it sounds like it is meant to be this time! Tell Mark that with baby showers, you pretty much get all of the necessities for the little one. Garage sale season is also coming into the horizon...
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    Dr Phil

    It's amazing to me how ignorant our own families can be about the disease. My Mom had a reality check when Queer Eye for the Straight Guy had an episode on with the guy that had CF and a transplant. Let's face it, there are more and more shows at least mentioning the illness and if it doesn't...
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    Christmas.....................

    We have no plans for Christmas Day to be spent with anyone but ourselves! I'll cook a brunch after the kids open all of their gifts and we'll lounge around with no place to go and no visitors. We'll watch a couple of movies while the turkey cooks and play new games that the kids get...
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    Vest question

    We moved the pressure? setting down to 2 for Cale. It was on 4 at first and it scared him. Do you know what it is set at? He liked it at 2 because he thought it was a little slower. Hopefully it is that simple. I sat in front of him and he stood the first couple of times. We held hands and...
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    Dr Phil

    I just saw the show and thought the segment was great. What a beautiful couple. Gwen is absolutely adorable. I thought they did a pretty good job describing what the illness is and what the treatments are. They also mentioned the need of organ donation which made me happy. I wish the couple...
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    Whats your New Years Resolution

    Eileen~Maybe we will get it done with the buddy system!<img src="i/expressions/wine.gif" border="0">
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    Whats your New Years Resolution

    To get the boxes of pictures I have in photo albums. Not scrap-booking, just to get them into some stickin albums so we can at least look at them! And to have digital images made into real pictures.
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    Vest question

    We were trained on the vest Friday and Cale has been doing 10 minute treatments. He absolutely loves it. He gets to push the 'gas pedal' on. He is use to a life jacket in the boat, so I think that made him more comfortable. We are going to work our time up so that the treatments get longer. We...
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