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... why do you all want to get CF tattoos? Isn't having the disease and having to do tons of stuff every day enough to remind you that you have it? Getting a CF tattoo would make sense if we got cured, kind of to remind ourselves where we come from... but getting one while we're sick with it...

LOL Damn.. that's a lot of things! I myself like to keep things simple. I sure wouldn't need everything you listed. I can spend hours doing nothing and just thinking of stuff without getting bored. Though I usually bring my laptop loaded with games, movies and TV shows and my antenna that...

Boiling, microwaving and vaporizing nebulizers only do disinfection. These methods do not sterilize. I was looking for the most efficient way of disinfecting my nebs. I stumbled upon this thread on a biology forum. It is very interesting. There are some people who seem very knowledgeable about...

Only tetracyclines cause yellowing/greying of the teeth. What you notice on your daughter's teeth after she has done her nebs is decalcification stains. It shows up when the teeth are dry or have been dry for a long amount of time. Have her leave her teeth to dry for several minutes. The same...

I have read that baking soda damages the enamel. You may be doing more harm than good by using baking soda.

My teeth have always been yellow. Yet, it is not plaque (having them cleaned at the dentist does not help). Fortunately, some people here seem to say that whitening stuff helps. So unless the yellowing was caused by tetracycline antibiotics (which is not a kind a antibiotic that is commonly...

Don't take them at the same time as your antibiotics. I'm not sure it's even a good idea to take them while you're on antibiotics. Talk to your doc before you start them.

Thank you all for your responses.

Kale contains bile acid sequestrants. BAS bind bile acids in the intestine and prevents them from doing their job (fat digestion). As a result, the liver has to produce even more of them and since it uses LDL cholesterol to do that, it will lower your LDL cholesterol levels. Ursodiol is one of...

Have her do daily dual n-back tests. http://brainworkshop.sourceforge.net/ This is supported by research and helps improve focus of people with ADHD. http://en.wikipedia.org/wiki/N-back http://www.nytimes.com/2012/04/22/magazine/can-you-make-yourself-smarter.html?pagewanted=all&_r=0 It's...

Exercises to correct that CF-related slouch? My shoulders are rotated frontward, I have a typical CF-related kyphosis. I started training the muscles in my upper back in the hopes that it will improve my condition, but I don't really have any idea whether what I'm doing is really going to help...

You have to make sure nothing sits at the bottom for a long amount of time. So you have to put them in water that's already boiling so the convection prevents them from touching the bottom of the pan.

I put them in a strainer and shake them vigorously in hot soapy water in a large stainless steel bowl. Then, I rinse them and put them in a pan of boiling water for 5 minutes. I take them out with tongs and let them dry covered with a clean dish cloth. I used to use paper towels until I realized...

Maybe she needs to learn to control her breathing? It sounds like she might be hyperventilating. If she is not... I don't want to rain on your parade but... she's at 50%. This can be expected depending on the severity of her affliction or infection. For example, my PFTs hover between 26% and...

It's not a matter of preference or of everyone being different. If there is fat in something, no matter whether it's liquid or solid, you need to take enzymes because your body doesn't have what's necessary to process it, i.e take the fat and turn it into a form that can be absorbed. That being...

Virtual Photo Walks Walk the Walk for Those who Can't. +Virtual Photo Walks on Google+ is a project to allow people using Google+ to be interactive citizens again. Utilizing the hangout feature and smart phones, people are able to visit and interact, with smart phone enabled photographers...

I think it's simply because VX-661 "came out" later.

Yes it happens and yes it can take time to recover from it. Did you try Google? CFers aren't the only ones taking Cipro you know. She needs to stop gymnastics until she doesn't feel pain anymore. Pain means that the risk of tendon rupture is still there. Even without pain the risk of tendon...

Or just do it because it will cost you less than 10 bucks to have a complete peace of mind in that aspect. occupyjapan, when people believe something is being done to them through witchcraft or other such means, there is nothing you can do about it. To them, your naysaying is only caused by you...

Interesting. Piperacillin used to give me a very mild allergic reaction that would build up during the course of the treatment. It would be mild enough that I wouldn't notice it, but I would notice that I felt worse (be more easily out of breath) after the IV course than before! And it WOULD...