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  1. M

    CFTR2 Site is now active

    I had trouble finding my mutation. I did find more just by looking it up on google.
  2. M

    Pleurisy or lung inflammation

    Thank you so much for the feedback so far. I gave a sputum culture last week amd so far no news. Yes the inhale is what sets off the pain. My muscles are a mess from all the coughing. I have had croup 2-3 times this past winter and then a plain old cold. I was hoping the spring would have been...
  3. M

    Pleurisy or lung inflammation

    Thank you so much for the feedback so far. I gave a sputum culture last week amd so far no news. Yes the inhale is what sets off the pain. My muscles are a mess from all the coughing. I have had croup 2-3 times this past winter and then a plain old cold. I was hoping the spring would have been...
  4. M

    Pleurisy or lung inflammation

    I have been having horrible chest/sternum pain. Just got a call from the nurse that I may have simple lung inflammation or pleurisy. I am scheduled to go in next week and do another lung function test and do a chest x-ray. They started me on a predisone burst today to see if the tightness and...
  5. M

    Pleurisy or lung inflammation

    I have been having horrible chest/sternum pain. Just got a call from the nurse that I may have simple lung inflammation or pleurisy. I am scheduled to go in next week and do another lung function test and do a chest x-ray. They started me on a predisone burst today to see if the tightness and...
  6. M

    Boiling nebs?

    Vinegar is a natural cleaner. I used vinegar in lots of my cleaning projects including my nebs and flutter.
  7. M

    Boiling nebs?

    Vinegar is a natural cleaner. I used vinegar in lots of my cleaning projects including my nebs and flutter.
  8. M

    Boiling nebs?

    My guess is soap residue. I usually just boil my nebs in vinegar water.
  9. M

    Boiling nebs?

    My guess is soap residue. I usually just boil my nebs in vinegar water.
  10. M

    Calling all CF bloggers!

    Here is my blog link.... http://notenoughoxygen.blogspot.com/
  11. M

    Calling all CF bloggers!

    Here is my blog link.... http://notenoughoxygen.blogspot.com/
  12. M

    Sternum Pressure and Soreness

    I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side). I get lots of muscle spasms on the left side of my chest. My chest gets tight.... if I cough enough the tightness loosens in the sternum area. I even have a sore (hot spot) on...
  13. M

    Sternum Pressure and Soreness

    I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side). I get lots of muscle spasms on the left side of my chest. My chest gets tight.... if I cough enough the tightness loosens in the sternum area. I even have a sore (hot spot) on...
  14. M

    Oxygen Concentrator Question

    Thank you for the feedback. It is not super far off.... I am just a perfectionist with my health and my machines.
  15. M

    Oxygen Concentrator Question

    Thank you for the feedback. It is not super far off.... I am just a perfectionist with my health and my machines.
  16. M

    Oxygen Concentrator Question

    I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters. Some mornings it is slight lower than 2 liters (more like 1.75 liters). Why would the liter level drop during the night?? No one in my house is touching the...
  17. M

    Oxygen Concentrator Question

    I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters. Some mornings it is slight lower than 2 liters (more like 1.75 liters). Why would the liter level drop during the night?? No one in my house is touching the...
  18. M

    Obama & Healthcare

    I am enrolled in one of those state mandated health insurance plans. Something it covers well and most things it doesn't cover at all. Without it I would without coverage. We want to move states but if we do I will back where I started from..... no insurance. My husband is self employed so...
  19. M

    Hospital Stays - optimizing health and cost (and minimizing frustration)

    I was told by a nurse that some drugs have to be mixed with sugars. I ask for those that can be mixed with saline and the rest I just deal with. Walk the halls extra, walk around the room extra, watch between meal snacks is one way of keeping sugars down and also not get sluggish. I suppose for...
  20. M

    Hospital Stays - optimizing health and cost (and minimizing frustration)

    I was told by a nurse that some drugs have to be mixed with sugars. I ask for those that can be mixed with saline and the rest I just deal with. Walk the halls extra, walk around the room extra, watch between meal snacks is one way of keeping sugars down and also not get sluggish. I suppose for...
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