We travel 3 1/2 to go to my son's cf clinic. There are only 2 cf clinics in my state and they are both a long drive. They are really good with my sons care. Very attentive and always there when I call and need them. It is well worth the drive. We too pay for our own expenses. We normally...
Congratulations Mark and Julie. I have to say you have three really beautiful angels there. I am glad to hear that everyone is doing okay. Take care and God Bless.
I have posted on here a few times about the trouble I have been having with my son and him not wanting to do his breathing treatments. We only found out he had cf in Nov of 2003. Anyway we had an apt. today for a checkup and everything went good. For those of you who don't know in Aug of last...
I just wanted to say one more thing. Like I said before we thought long and hard before going through with the feeding tube. We tried everything as should you. My son was listed as failure to thrive at the time. I believe he was like in the teens to low 20 percenticile for his weight and...
Sorry to hear that. You will be in our thoughts and players. That was a nice way to say goodbye especially since goodbyes are so hard and seem so permanent.
Huge Congratualtions Mark and Julie. Glad everything went good. Glad to hear they are all Healthy this is an important statement when you are talking about premies and triplets at that. We are so glad to hear that they are all doing so well. I know that you would love your children no matter...
As for the formula for the feeding it depends on your insurance type. Eric is on medicad through ssi and his is paid for. It is not cheap. I beleive his formula is between 200 and 300 dollars. Depends on the type of formula and how much he takes. Eric is on Nutren 2.0 and takes 3 cans a night.
i hope this helps you to see it. Like I said we tried everything. This was our last choice and has been a wonderful experience. He has gained weight and has had no problem. This type of mickey has to be replace 3 times a year but it is very simple. We had his changed out in June 6 mths and it...
Hoping all goes well. It sounds like you will be parents soon to some bery beautiful babies. Good luck and Get some Rest Mark and tell Julie she is in all of our hopes and prayers.
I am not sure. My son's doctor had him do a naso tube for 3 weeks to see if extra feedings would help. They wanted to try it out before doing surgery. Of course they seen he would gain some weight so they did the feeding tube. I couldn't imagine putting the naso tube down every night. He left...
I really debated about getting my son his feeding tube but in the end the hopefull benefits weighed the surgery. He has done really well and has gained a good bit of weight. He is catching up to his peers and his self esteem has really been lifted. My son was 12 and only wieghed 60 lbs. on a...
Thank you, We are lucky that looks are decieving. The feeding tube we had put in place in Jan has really been a help. He has gained almost 12 to 15 lbs since then.
I found a school picture of him by himself and thought I would include it
This last year has been rough with his teenage rebellion...
This is a picture of my son Eric who has cf he is the one on the far right. The first boy is my youngest son and the middle boy is my nephew. The bottom picture is of neice and daughter (3 yrs old )
Would you mind if I printed it for my son. I think he would enjoy learning that poem with credit to the author of course. I think it is so cute and so right to the point.
Thanks for letting us know mark. You guys have an extended family on this website and we are all praying and hoping things go well. Take care of yourself. Julie get some rest don't worry too much, I know that is easier than said.
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