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We had a rep come to our home a few days ago. Unfortunately, we did not qualify. First of all, the CFer can't get an individual policy (I think we all knew that), but, they can be a dependent. Second of all, in WI, if you are on Medicaid and don't pay anything for premiums, you are not able...

We are finally back from the hospital! Yay! He had IV antibiotics and the vigorous CF protocol all 14 days. The G-tube was placed via open surgery due to tons of scar tissue from previous surgeries. Hmw, you are correct that they start with a G-tube and see how it goes before proceeding to a...

We are finally back from the hospital! Yay! He had IV antibiotics and the vigorous CF protocol all 14 days. The G-tube was placed via open surgery due to tons of scar tissue from previous surgeries. Hmw, you are correct that they start with a G-tube and see how it goes before proceeding to a...

We are finally back from the hospital! Yay! He had IV antibiotics and the vigorous CF protocol all 14 days. The G-tube was placed via open surgery due to tons of scar tissue from previous surgeries. Hmw, you are correct that they start with a G-tube and see how it goes before proceeding to a...

Yes, that was me. I was wondering what happened to our discussion. This clears it all up! Thanks!

Yes, that was me. I was wondering what happened to our discussion. This clears it all up! Thanks!

Yes, that was me. I was wondering what happened to our discussion. This clears it all up! Thanks!

hmw - Thanks for the reply. We had "the" appointment today. They had us come in two weeks earlier than originally planned due to concerns. Tomorrow, we are scheduled for our first hospitalization since we got our son almost a year ago. He is having IV antibiotics for one week, then the...

hmw - Thanks for the reply. We had "the" appointment today. They had us come in two weeks earlier than originally planned due to concerns. Tomorrow, we are scheduled for our first hospitalization since we got our son almost a year ago. He is having IV antibiotics for one week, then the...

hmw - Thanks for the reply. We had "the" appointment today. They had us come in two weeks earlier than originally planned due to concerns. Tomorrow, we are scheduled for our first hospitalization since we got our son almost a year ago. He is having IV antibiotics for one week, then the...

Grantsmom - Thanks for replying! I'm relieved to hear that someone else got a tube at this early age. Did Grant try pulling the tube out overnight? Did you worry about the tube getting caught around his neck? Did the overnight feeds make him poop overnight? How is he doing with his regular...

Grantsmom - Thanks for replying! I'm relieved to hear that someone else got a tube at this early age. Did Grant try pulling the tube out overnight? Did you worry about the tube getting caught around his neck? Did the overnight feeds make him poop overnight? How is he doing with his regular...

Grantsmom - Thanks for replying! I'm relieved to hear that someone else got a tube at this early age. Did Grant try pulling the tube out overnight? Did you worry about the tube getting caught around his neck? Did the overnight feeds make him poop overnight? How is he doing with his regular...

hmw - Thanks for all of the great info! I'm glad you mentioned creating a button hole in one-piece sleepers. When we first found out we were getting our foster son, my mom and I went rummage sale crazy and bought tons of sleepers up to size 4T (he is currently wearing 12 month sleepers!). I...

hmw - Thanks for all of the great info! I'm glad you mentioned creating a button hole in one-piece sleepers. When we first found out we were getting our foster son, my mom and I went rummage sale crazy and bought tons of sleepers up to size 4T (he is currently wearing 12 month sleepers!). I...

hmw - Thanks for all of the great info! I'm glad you mentioned creating a button hole in one-piece sleepers. When we first found out we were getting our foster son, my mom and I went rummage sale crazy and bought tons of sleepers up to size 4T (he is currently wearing 12 month sleepers!). I...

Mom2owen - Thanks for telling me your story! Thanks for the tip about the button-down pajama shirts, too! I'm glad to hear that the tube has never been pulled out. It's amazing that Owen gained 14 pounds in two months! Your situation sounds a lot like ours, with meal-time struggles. I'm...

Mom2owen - Thanks for telling me your story! Thanks for the tip about the button-down pajama shirts, too! I'm glad to hear that the tube has never been pulled out. It's amazing that Owen gained 14 pounds in two months! Your situation sounds a lot like ours, with meal-time struggles. I'm...

Mom2owen - Thanks for telling me your story! Thanks for the tip about the button-down pajama shirts, too! I'm glad to hear that the tube has never been pulled out. It's amazing that Owen gained 14 pounds in two months! Your situation sounds a lot like ours, with meal-time struggles. I'm...

ymikhale - Well, we couldn't find the coconut oil, but we'll try another store tomorrow. Thanks for the info! hmw - Thanks for sharing your experience, it sounds very similar to our own. Our son is gaining the same amount of weight as a "normal" kid would and not catching up to the curve...