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  1. K

    scholarships

    I wanted to bump this. I looked into all the above scholarships and I am going to apply to them. Does anyone else have any other scholarships for CF, single, low income, that they know of? I mainly want to apply to just CF scholarships and not disability scholarships since I will have a better...
  2. K

    lip cuts

    Thank you everyone who responded. I have a doctor apt coming up and I'm going to ask him about everything you recommended. After doing some more research, I'm convinced it's thrush. I get them around the month with a yeast infection. Now that I know what is wrong, I want to know why is my body...
  3. K

    Trying to get pregnant

    Your comment gave me hope.
  4. K

    lip cuts

    Im gonna buy some zinc tomorrow. I don't know if it has to do with MAC or Staph or some other infection that I have. I don't get it at all. I had it all the time in 8th grade, 28 now. It stopped and now its back, full force. Just when it heals, it comes back a week later.
  5. K

    lip cuts

    Does the corner of your mouth where the edge of your lips are split like a paper cut? I sure most would think that "oh my lips are so dry and then I opened my mouth too wide, and it split" but I know it has to do with CF and possible yeast infections. It stings when you eat something spicy or...
  6. K

    Cutting

    Hello, I am 28 years old and also going through a breakup. I think having cf causes extra stress and it feels like the disease is baggage that not everyone will accept. I feel very alone with cf and without my former fiance is painful because I feel like im dieing alone. I am going to seek help...
  7. K

    Lung bacterias

    4hats, please keep me posted on your progress with this. I have read some things on here where they said the treatment was worse then the disease. It made me scared about the treatment. I too had 6 straight days of coughing up blood. I have never done that before and I went straight to the...
  8. K

    Lung bacterias

    Thank you for the answers everyone. Ive only ever cultured staph before. I believe it was Staphylococcus aureus but not totally sure. Just found out awhile back that I did culture Aspergillus but the doctor didn't say anything. I believe in my current culture, the Aspergillus was gone though. I...
  9. K

    Lung bacterias

    Can someone give me a list of the different bacteria's that a person can culture with CF. Just the main ones please. I am wanting to know the severity of the different things we culture from least severe to worst.
  10. K

    6 days straight, coughed up blood

    I agree, you are right. I should of taken action sooner. I believe the MAC was in my lungs before this but that illness did a lot of damage. I asked the doctor why it always happens at night when I lay down. He had no answer. Thank you for the explanation
  11. K

    Netflix!!!!! Must see

    You should post the movie to your facebook. I think movies about CF should be seen by the general public because most do not know what we go through and that drives me nuts. I hate it when people see that I look normal but I need to take precautions with this disease. When someone says "breast...
  12. K

    6 days straight, coughed up blood

    My other question in regards to Bactrim. I have been on it two weeks now. I can feel the beginning signs of a ulcer. I took some coconut oil and that helped with the burning a couple days ago. I havnt felt it again in a day or two. Should I continue that Bactrim. If MAC is the probem, the...
  13. K

    6 days straight, coughed up blood

    As far as the cats litter, I don't have anyone else that will do it for me. I started doing it outside now for some time. When I was sick, I should of taken some antibiotics but they give me really bad ulcers in my stomach. Once it took me 6 months to get rid of and I was in consistent pain. I...
  14. K

    6 days straight, coughed up blood

    Thank you for your advice. I always culture staph but maybe I am just run down. It really freaked me out though. I am not taking pulmozyme or any paid meds. I don't normally take Vitamin K but I will start now, after this. It is an over the counter Vitamin K but I try to take my vitamins with...
  15. K

    6 days straight, coughed up blood

    I haven't been on iv antibiotic or oral in almost 2 years. But I was sick about 3 weeks prior, very sick with really bad bronchitis. The worst bronchitis I have ever had where I was coughing up balls of mucus for about 3 weeks. I try to keep my immune system active and not take antibiotics until...
  16. K

    6 days straight, coughed up blood

    I want to add that I change my cats's litter all the time. Would this do something to my lungs? I have now started to wear a mask when changing the litter. Im sure it doesn't have anything to do with it, just wondering if changing the litter is super harmful for a cfer?
  17. K

    6 days straight, coughed up blood

    I wanted to know if anyone has had this happen to them before. It started out with the night sweats for a week, but I was feeling normal besides that. Then I started to feel really tired and I coughed up blood one night. I always cough up blood around 6pm-7pm when I sit or lay down in bed but I...
  18. K

    Anyone with Cystic Fibrosis taken ACCUTANE for acne?

    Hello, yes I toom it when j was 19. I am now 28. My advice, dont do it!! My face was clear for 6 months and then the acne came back full force. I started to clear up again at about 25 years old. My hair was falling out in clumps and I was craving very oily food. I have a mild case of cf so I...
  19. K

    Night Sweats

    Ok maybe there is something wrong in my lungs right now because I just coughed up blood before bed. This doesnt happen often to me. I had it happen about 4 months and before that it was years ago. Ugh!! Fml its always something. Dr appointment here I come. To change the subject, coughing up...
  20. K

    Night Sweats

    I wanted to add some things. I am not hot when I wake up, I feel like im at the perfect temp under the blankets. I am just sweaty. There is nothing wrong with my lungs right now either. Last week I just did a fast pace 8 mile hike. I have also only ever cultured staph but I normally get the...
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