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  1. K

    Please drink lots of water cfers!

    My doctor never told me that us cfers can get kidney stones from cf. I just wanted to remind you all to drink lots of water to avoid what I am dealing with. I have a 1cm stone in my kidney, which is huge. I did the ultra sonic waves surgery 2 weeks ago and the stone didnt break up. They put me...
  2. K

    Cf and kidney stones

    Thanks for the advice everyone. I am having the lithotripsey on thurs! I was feeling uneasy but read these posts again, and I feel better now!!
  3. K

    A couple random questions

    Hello, just wondering if any cfers out there get tonsil stones in their tonsils. It where the pockets in your tonsils fill with a white, hard, little stones? Whenever I am feeling slightly run down, I get them. Wondering if they are cf related. Also I know 30% of woman with cf are not fertile...
  4. K

    Cf and kidney stones

    I went to the doctor yesterday and they told me they are going to have me do the surgery in a little less then two weeks. I am going to do the sonic waves. Im a little sad because I just had my polyp surgery less then two months ago. I wish the cf doctors would of told me when I was younger to...
  5. K

    Cf and kidney stones

    How long were you down for and what exactly did they do during the surgery? I still have hope that maybe I can pass it natually. Right now I am having minor back sharp pain that comes and goes. Like a light stab in the back every couple mins. When I was in the emergency room a month ago, they...
  6. K

    Cf and kidney stones

    Hello, I found out about a month ago that I have a 9mm kidney stone that is still giving me some pain in my back. I have not seen a urlolgist yet but I have an appointment this monday. I have DD508 and am 26 years old. I really think this has something to do with the cf. I dont take medicine for...
  7. K

    IV's & alcohol

    Im sure it will not hurt you but it might lower your immune system. Everytime I am feeling like I slightly might get sick and then I drink, I end up sick.
  8. K

    IV's & alcohol

    Im sure it will not hurt you but it might lower your immune system. Everytime I am feeling like I slightly might get sick and then I drink, I end up sick.
  9. K

    Are you pregnant?

    For the women who had a baby, any early pregnancy signs. I too have DDf508, 26 years old, been trying for a very long time, and I am healthy. I have not missed my period but a couple days ago my breast started to feel like there was a painful lump by the armpit. A couple days later the other...
  10. K

    CF/bronchiectasis moms

    Hello, I too have wondered and gave this a lot of thought. I am 26 now and hoping to start trying in about a year and a half. My future husband has a 5 year old son who is a ton of work. It makes me wonder if I will be able to handle it in the future. I really do want a kid in the future too. I...
  11. K

    CF/bronchiectasis moms

    Hello, I too have wondered and gave this a lot of thought. I am 26 now and hoping to start trying in about a year and a half. My future husband has a 5 year old son who is a ton of work. It makes me wonder if I will be able to handle it in the future. I really do want a kid in the future too. I...
  12. K

    A Hopeful Diary of Progress

    I could not imagine smoking with CF and Im a healthy CFer. How are you even able to function? I have pfts always in the 80-83% and I would feel like crap if I was smoking. I guess the only thing I can say is if you want to live bad enough, you will quit. Its all on you with what you want!
  13. K

    A Hopeful Diary of Progress

    I could not imagine smoking with CF and Im a healthy CFer. How are you even able to function? I have pfts always in the 80-83% and I would feel like crap if I was smoking. I guess the only thing I can say is if you want to live bad enough, you will quit. Its all on you with what you want!
  14. K

    770 approved!!!!!!!!!

    Does anyone know if the one mutation the drug is for is a mild or more severe case of CF? Cant wait for df508 to happen because that effects 90 percent of us!
  15. K

    770 approved!!!!!!!!!

    Does anyone know if the one mutation the drug is for is a mild or more severe case of CF? Cant wait for df508 to happen because that effects 90 percent of us!
  16. K

    Question for the older cfers

    I agree, they do give me hope too!! I really like hearing your guys stories!
  17. K

    Question for the older cfers

    I agree, they do give me hope too!! I really like hearing your guys stories!
  18. K

    sometimes you just need some rest

    That is true biker, people need to keep their comments to themselves! I can not believe someone said that to you! I would of replied " I have a lung disease, jerk!!" lol and I feel the same right now too. Been a little under the weather for awhile. For the most part, I feel like I can control my...
  19. K

    sometimes you just need some rest

    That is true biker, people need to keep their comments to themselves! I can not believe someone said that to you! I would of replied " I have a lung disease, jerk!!" lol and I feel the same right now too. Been a little under the weather for awhile. For the most part, I feel like I can control my...
  20. K

    Question for the older cfers

    Thank you for the advice! I plan to start working out again after the move into the new house is over! Im excited to start again because I am seeing it is getting harder for me to do basic things even though I am healthy. I do not like feeling this way at all. I like hearing everyones story, its...
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