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ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way since we started nebs. and IV antibiotics but i think it's getting worse. should i worry? is there...

hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here in South africa the audiologist reccomended we test her hearing before and after every IV drip...

hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here in South africa the audiologist reccomended we test her hearing before and after every IV drip...

hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here in South africa the audiologist reccomended we test her hearing before and after every IV drip...

hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here in South africa the audiologist reccomended we test her hearing before and after every IV drip...

hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here in South africa the audiologist reccomended we test her hearing before and after every IV drip...

Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive...

Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive...

Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive...

Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive...

Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive...

my 2 year old with CL gets a very red, irritated eye (left only?) every few weeks. it clears up over time but not sure what from. I thought maybe all the nebulizing? any ideas?? thank you all so so much for your input on vitamins, i will check it out...Chev

my 2 year old with CL gets a very red, irritated eye (left only?) every few weeks. it clears up over time but not sure what from. I thought maybe all the nebulizing? any ideas?? thank you all so so much for your input on vitamins, i will check it out...Chev

my 2 year old with CL gets a very red, irritated eye (left only?) every few weeks. it clears up over time but not sure what from. I thought maybe all the nebulizing? any ideas?? thank you all so so much for your input on vitamins, i will check it out...Chev

my 2 year old with CL gets a very red, irritated eye (left only?) every few weeks. it clears up over time but not sure what from. I thought maybe all the nebulizing? any ideas?? thank you all so so much for your input on vitamins, i will check it out...Chev

my 2 year old with CL gets a very red, irritated eye (left only?) every few weeks. it clears up over time but not sure what from. I thought maybe all the nebulizing? any ideas?? thank you all so so much for your input on vitamins, i will check it out...Chev

my daughter of 2 with CF currently takes an array of vitamins daily; a multi vitamin, iron, vitamin E. I heard that in some places you can get one 'CF vitamin' that has everything included. Anyone know about this and where i can get it? thanks. Chev

my daughter of 2 with CF currently takes an array of vitamins daily; a multi vitamin, iron, vitamin E. I heard that in some places you can get one 'CF vitamin' that has everything included. Anyone know about this and where i can get it? thanks. Chev

my daughter of 2 with CF currently takes an array of vitamins daily; a multi vitamin, iron, vitamin E. I heard that in some places you can get one 'CF vitamin' that has everything included. Anyone know about this and where i can get it? thanks. Chev

my daughter of 2 with CF currently takes an array of vitamins daily; a multi vitamin, iron, vitamin E. I heard that in some places you can get one 'CF vitamin' that has everything included. Anyone know about this and where i can get it? thanks. Chev