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  1. M

    Cf care in buffalo and/or Rochester

    I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...
  2. M

    Cf care in buffalo and/or Rochester

    I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...
  3. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  4. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  5. M

    Did he really say that?

    screw a comeback, just deck him in his F&@&ing face !!!
  6. M

    Thoughts on Make a Wish

    Heather i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make cuts and...
  7. M

    Thoughts on Make a Wish

    Heather i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make cuts and...
  8. M

    Thoughts on Make a Wish

    Heather <br /> <br />i wouldnt exactly listen to your cff rep about cf not qualifing as a fatal disease for make a wish. Yes kids are living longer, but not every cf kid is. The problem with make a wish is like every other foundation they are hurting financially so in time they will have to make...
  9. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a> They provide great service, overnight shipping, and can help get you into contact with services to help pay for co-pays. The owners have...
  10. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a> They provide great service, overnight shipping, and can help get you into contact with services to help pay for co-pays. The owners have...
  11. M

    Been told to use Cf Services Pharmacy

    I use the CF Pharmacy based in Orlando, FL <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfpharmacy.com/ ">http://www.cfpharmacy.com/ </a><br /> <br />They provide great service, overnight shipping, and can help get you into contact with services to help pay for...
  12. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  13. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  14. M

    getting a port on friday

    My port was the smartest thing I ever did. Conscious sedation was a lot of fun...great buzz !! However I was very sore for a few days after, so make sure they give you something for a few days after. Most important thing is to make sure you flush the port every month, keep the area clean with...
  15. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  16. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  17. M

    Approved For SSDI

    I have had ssdi for 2 years now. I never used a attorney and handled the whole process my self. Never had to go to court for it, it was approved immediatly by ss office. They never mentioned having to recert. As a matter of fact the letter says I will be receiving payments until I reach...
  18. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
  19. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
  20. M

    Orlando Golf Tournament for CF Saturday

    Well the golf tournament was great !!! We ended up earning over $6,000 all which will be used to help patients with Cystic Fibrosis in Central Florida !!!
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