Search results

  1. G

    Words from One CF Mom to Others

    I enjoyed that even though I needed some tissue to read. Very wise. It sounds like you are an incredible family. I also have to comment that your Mother must be in her 50's and she looks really young, amazing really.
  2. G

    Words from One CF Mom to Others

    I enjoyed that even though I needed some tissue to read. Very wise. It sounds like you are an incredible family. I also have to comment that your Mother must be in her 50's and she looks really young, amazing really.
  3. G

    Words from One CF Mom to Others

    I enjoyed that even though I needed some tissue to read. Very wise. It sounds like you are an incredible family. I also have to comment that your Mother must be in her 50's and she looks really young, amazing really.
  4. G

    Words from One CF Mom to Others

    I enjoyed that even though I needed some tissue to read. Very wise. It sounds like you are an incredible family. I also have to comment that your Mother must be in her 50's and she looks really young, amazing really.
  5. G

    Words from One CF Mom to Others

    I enjoyed that even though I needed some tissue to read. Very wise. It sounds like you are an incredible family. I also have to comment that your Mother must be in her 50's and she looks really young, amazing really.
  6. G

    Over 4 years later and still no symptoms.....

    I think I read that 20% of CFers are pancreatic sufficient. But even for them most of them their lungs do get worse over time. They just don't often have problems from the get go. One kind of famous one who is pancreatic sufficient is Triathlete Lisa Bentley she wasn't diagnosed with CF until...
  7. G

    Over 4 years later and still no symptoms.....

    I think I read that 20% of CFers are pancreatic sufficient. But even for them most of them their lungs do get worse over time. They just don't often have problems from the get go. One kind of famous one who is pancreatic sufficient is Triathlete Lisa Bentley she wasn't diagnosed with CF until...
  8. G

    Over 4 years later and still no symptoms.....

    I think I read that 20% of CFers are pancreatic sufficient. But even for them most of them their lungs do get worse over time. They just don't often have problems from the get go. One kind of famous one who is pancreatic sufficient is Triathlete Lisa Bentley she wasn't diagnosed with CF until...
  9. G

    Over 4 years later and still no symptoms.....

    I think I read that 20% of CFers are pancreatic sufficient. But even for them most of them their lungs do get worse over time. They just don't often have problems from the get go. One kind of famous one who is pancreatic sufficient is Triathlete Lisa Bentley she wasn't diagnosed with CF until...
  10. G

    Over 4 years later and still no symptoms.....

    I think I read that 20% of CFers are pancreatic sufficient. But even for them most of them their lungs do get worse over time. They just don't often have problems from the get go. <br /> <br />One kind of famous one who is pancreatic sufficient is Triathlete Lisa Bentley she wasn't diagnosed...
  11. G

    Ataluren-the drug that "fixes" the CF gene

    I really hope this drug is everything I imagine it is. I wonder when it will come to market. I don't live in an area where they are doing trials but my kids would of been ineligible anyway because they are too young. I would of driven hours for a chance of using this drug.
  12. G

    Ataluren-the drug that "fixes" the CF gene

    I really hope this drug is everything I imagine it is. I wonder when it will come to market. I don't live in an area where they are doing trials but my kids would of been ineligible anyway because they are too young. I would of driven hours for a chance of using this drug.
  13. G

    Ataluren-the drug that "fixes" the CF gene

    I really hope this drug is everything I imagine it is. I wonder when it will come to market. I don't live in an area where they are doing trials but my kids would of been ineligible anyway because they are too young. I would of driven hours for a chance of using this drug.
  14. G

    Ataluren-the drug that "fixes" the CF gene

    I really hope this drug is everything I imagine it is. I wonder when it will come to market. I don't live in an area where they are doing trials but my kids would of been ineligible anyway because they are too young. I would of driven hours for a chance of using this drug.
  15. G

    Ataluren-the drug that "fixes" the CF gene

    I really hope this drug is everything I imagine it is. I wonder when it will come to market. I don't live in an area where they are doing trials but my kids would of been ineligible anyway because they are too young. I would of driven hours for a chance of using this drug.
  16. G

    Why do I have bad lungs Mommy?

    So last night my 4 year old asked me that very question and I wasn't sure how to answer it. He knows he gets Pulmozyme and does daily chest percussions and he takes Crean 10's and a few other meds. Recently he picked up a bug, for the first time, and it was Influenza, however, until now he...
  17. G

    Why do I have bad lungs Mommy?

    So last night my 4 year old asked me that very question and I wasn't sure how to answer it. He knows he gets Pulmozyme and does daily chest percussions and he takes Crean 10's and a few other meds. Recently he picked up a bug, for the first time, and it was Influenza, however, until now he...
  18. G

    Why do I have bad lungs Mommy?

    So last night my 4 year old asked me that very question and I wasn't sure how to answer it. He knows he gets Pulmozyme and does daily chest percussions and he takes Crean 10's and a few other meds. Recently he picked up a bug, for the first time, and it was Influenza, however, until now he...
  19. G

    Why do I have bad lungs Mommy?

    So last night my 4 year old asked me that very question and I wasn't sure how to answer it. He knows he gets Pulmozyme and does daily chest percussions and he takes Crean 10's and a few other meds. Recently he picked up a bug, for the first time, and it was Influenza, however, until now he...
  20. G

    Why do I have bad lungs Mommy?

    So last night my 4 year old asked me that very question and I wasn't sure how to answer it. He knows he gets Pulmozyme and does daily chest percussions and he takes Crean 10's and a few other meds. Recently he picked up a bug, for the first time, and it was Influenza, however, until now he...
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