Jess-We are keeping you both in our thoughts. You have a deep love for one another and hopefully that will keep him strong enough to pull through.
Blessings
It will be interesting to see what our insurance will do for Cale's vest. What we've been told so far is that 'we shouldn't have any problems'. Those seem like famous last words though. The Doctors told us we had to wait until he turns 2 for the vest. After he turned 2 they told us to wait until...
Hmmmmm. This is all very interesting to me. We've been thinking about all of this, even though our son is 3. What the future insurance issues may be. I had no idea that he could possibly stay on our insurance after college. Thanks!
Hi Jenica. Cale's mutations are both Delta F508. He had SOOOO many stool samples through the course of a year. Some of them were collected in a baggie. Others there was so much of them without urine that the doctor could just spoon some out of his diaper. He had some before the CF testing...
I know what you mean Lynsey. After Cale's diagnosis I was a wreck! I had 2 friends that researched it and found out as much as they could. They were there for me to cry on and I will NEVER forget that! The others acted like we were just told he had the flu. I think all of things you mentioned...
Hi Jenica. My son didn't really show pancreatic problems until he was on cereals, baby food and solids. Then we really saw a difference. Now looking back I noticed that he was hungry all of the time, but I didn't really notice anything until he was about 6 months, considering his stools. Of...
I just wanted to share...I volunteered to work...outside the home today at my 'evening job' ...so my husband was home alone with the kids from 9-5:30. (it's retail) He made sure he told me all of the chores he did and then he complained because you couldn't even tell he spent all of this time on...
Was the technician from an accredited CF center? Our first tech was at a regular hospital and told us that in like 15 years she has only seen one positive test for CF. My guess is that she does it wrong!! Like Julie said, we lived on false hope though my guts were telling me the whole time he...
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