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  1. R

    My takeaway from the NACFC

    <br>Thanks for the update!Q In regards to the smoking. Is this the nicotine issue we were talking about. A reduction in CFTR is not good or do you mean something else. Or are they saying CF's should not smoke? <br> 
  2. R

    My takeaway from the NACFC

    <br>Thanks for the update!Q In regards to the smoking. Is this the nicotine issue we were talking about. A reduction in CFTR is not good or do you mean something else. Or are they saying CF's should not smoke?<br>
  3. R

    My takeaway from the NACFC

    <p><br>Thanks for the update!<p>Q In regards to the smoking. Is this the nicotine issue we were talking about. A reduction in CFTR is not good or do you mean something else. Or are they saying CF's should not smoke?<p><p><br>
  4. R

    People on the new drugs: How do you REALLY feel?

    It really is like watching a pot boil..... Each month seems like years! Lets get this done!
  5. R

    People on the new drugs: How do you REALLY feel?

    It really is like watching a pot boil..... Each month seems like years! Lets get this done!
  6. R

    People on the new drugs: How do you REALLY feel?

    It really is like watching a pot boil..... Each month seems like years! <br />Lets get this done!
  7. R

    Vertex 770 question

    Question? It seems that there are over 1500 CF mutations, is it possible that everyone has the same mutations just aligned or presented differently. If we have DDF508 is it possible we have the GD155 visa versa.
  8. R

    Vertex 770 question

    Question? It seems that there are over 1500 CF mutations, is it possible that everyone has the same mutations just aligned or presented differently. If we have DDF508 is it possible we have the GD155 visa versa.
  9. R

    Vertex 770 question

    Question? <br />It seems that there are over 1500 CF mutations, is it possible that everyone has the same mutations just aligned or presented differently. If we have DDF508 is it possible we have the GD155 visa versa. <br />
  10. R

    Vertex 770 question

    Thanks for the updates! <br>Here is a facebook page that would love your info. <br><a href="http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/">http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/</a>
  11. R

    Vertex 770 question

    Thanks for the updates! <br>Here is a facebook page that would love your info. <br><a href="http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/">http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/</a>
  12. R

    Vertex 770 question

    Thanks for the updates! <br>Here is a facebook page that would love your info. <br><a href="http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/">http://www.facebook.com/GlutenSolutions#!/groups/153375788050316/</a>
  13. R

    Anybody try AQUADEKS???????????

    I have tried numerous times to take the Aquadeks, the problem for me is that they are too concentrated. And they have soy in it. I take them and I break out and get some burp. You could open the capsule and put some in a liquid on via g-tube if applicable. I think they make them without even...
  14. R

    Anybody try AQUADEKS???????????

    I have tried numerous times to take the Aquadeks, the problem for me is that they are too concentrated. And they have soy in it. I take them and I break out and get some burp. You could open the capsule and put some in a liquid on via g-tube if applicable. I think they make them without even...
  15. R

    Anybody try AQUADEKS???????????

    I have tried numerous times to take the Aquadeks, the problem for me is that they are too concentrated. And they have soy in it. I take them and I break out and get some burp. <br />You could open the capsule and put some in a liquid on via g-tube if applicable. <br />I think they make them...
  16. R

    Are you a vegetarian? What are your PFT/FEV1 Levels like?

    I am gluten free, sugar free and processed food free. <br>I try to eat 50% vegetarian and 30% raw. <br>Today I had spinach, watercress, beet, carrot, yam, brussel sprout juice! <br>I get lots of these calories via g-tube. If you look at the Paleo Diet this seems to be the ideal diet for CF...
  17. R

    Are you a vegetarian? What are your PFT/FEV1 Levels like?

    I am gluten free, sugar free and processed food free. <br>I try to eat 50% vegetarian and 30% raw. <br>Today I had spinach, watercress, beet, carrot, yam, brussel sprout juice! <br>I get lots of these calories via g-tube. If you look at the Paleo Diet this seems to be the ideal diet for CF...
  18. R

    Are you a vegetarian? What are your PFT/FEV1 Levels like?

    <p>I am gluten free, sugar free and processed food free. <br>I try to eat 50% vegetarian and 30% raw. <br>Today I had spinach, watercress, beet, carrot, yam, brussel sprout juice! <br>I get lots of these calories via g-tube. If you look at the Paleo Diet this seems to be the ideal diet for CF...
  19. R

    frustrated...son is sick AGAIN..it never ends

    Ive been taking watercress, spinach and brussel sprout juice and it seems to help keep me clear. Also maybe if you talk to an ENT doc to see about sinus surgery. ALos look at taking probiotics to re-establish good bacteria
  20. R

    frustrated...son is sick AGAIN..it never ends

    Ive been taking watercress, spinach and brussel sprout juice and it seems to help keep me clear. Also maybe if you talk to an ENT doc to see about sinus surgery. ALos look at taking probiotics to re-establish good bacteria
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