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  1. L

    MY CF STORY AGE 52

    Thanks for sharing your story with us Eric! I also live in CT...Southbury. I started a Great Strides walk last year and would love if you would join us on May 19th. I lived here from 1987-1990 and was seen at Yale then moved away and returned here in 2008. I went back to Yale and was cared for...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    Thanks Amy! I too feel so blessed that my parents made my health such a priority. We've been doing hand cpt on Isaac since finding out about his cf at 3 months and then I got him a vest at 7 months old. It's the only time he gets to watch tv so he doesn't fight us at all. He's such a good boy...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    Thanks Amy! I too feel so blessed that my parents made my health such a priority. We've been doing hand cpt on Isaac since finding out about his cf at 3 months and then I got him a vest at 7 months old. It's the only time he gets to watch tv so he doesn't fight us at all. He's such a good boy...
  4. L

    Video Day in a life of my son & I shown at NACFC conference - see link

    Thanks Amy! I too feel so blessed that my parents made my health such a priority. We've been doing hand cpt on Isaac since finding out about his cf at 3 months and then I got him a vest at 7 months old. It's the only time he gets to watch tv so he doesn't fight us at all. He's such a good boy...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    thanks everyone! I wish the video could have been longer so that our whole story could be told. Isaac continues to only show the two mutations. We've repeated his sweat test and although it is a 11 I suspect he has some CFTR misfunction. He hasn't cultured PA or had any other sign or symptom of...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    thanks everyone! I wish the video could have been longer so that our whole story could be told. Isaac continues to only show the two mutations. We've repeated his sweat test and although it is a 11 I suspect he has some CFTR misfunction. He hasn't cultured PA or had any other sign or symptom of...
  7. L

    Video Day in a life of my son & I shown at NACFC conference - see link

    thanks everyone! I wish the video could have been longer so that our whole story could be told. Isaac continues to only show the two mutations. We've repeated his sweat test and although it is a 11 I suspect he has some CFTR misfunction. He hasn't cultured PA or had any other sign or symptom of...
  8. L

    Thank You

    Rami, You'll be sorely missed. I'm praying for a miracle ~ Best regards, Lauren
  9. L

    Thank You

    Rami, You'll be sorely missed. I'm praying for a miracle ~ Best regards, Lauren
  10. L

    Thank You

    Rami, You'll be sorely missed. I'm praying for a miracle ~ Best regards, Lauren
  11. L

    Alternative treatments for MRSA

    I am considering trying a radical change in my life in an effort to damage my MRSA colonies and hopefully some PA colonies too! Has anyone done anything untraditional to help battle their MRSA? http://www.livestrong.com/article/23406-alternative-mrsa-treatment I am becoming increasingly...
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    Readers Digest Contests~

    done!
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    Readers Digest Contests~

    done!
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    Readers Digest Contests~

    done!
  15. L

    Best CF Centers

    I agree with Heather but also want to say I think we could have a fairly interesting discussion about specific clinics and help novice parents figure out which is the better. And to me the #1 most important thing in a clinic is that each time a child has a cough or other problem, the doctor is...
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    Best CF Centers

    I agree with Heather but also want to say I think we could have a fairly interesting discussion about specific clinics and help novice parents figure out which is the better. And to me the #1 most important thing in a clinic is that each time a child has a cough or other problem, the doctor is...
  17. L

    Best CF Centers

    I agree with Heather but also want to say I think we could have a fairly interesting discussion about specific clinics and help novice parents figure out which is the better. And to me the #1 most important thing in a clinic is that each time a child has a cough or other problem, the doctor is...
  18. L

    Post Traumatic Stress in parents of kids with CF

    This was so fascinating! Thanks for sharing.
  19. L

    Post Traumatic Stress in parents of kids with CF

    This was so fascinating! Thanks for sharing.
  20. L

    Post Traumatic Stress in parents of kids with CF

    This was so fascinating! Thanks for sharing.
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