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I will post after I talk to Cf speicialist. I will definitely question the diagnosis of CRMS. I want her to have the best care possible. Her sweat test were both borderline one was 50. She couldn't finish the NPD but the first stage she made it thru was also borderline -30 and -30 and below...

I will post after I talk to Cf speicialist. I will definitely question the diagnosis of CRMS. I want her to have the best care possible. Her sweat test were both borderline one was 50. She couldn't finish the NPD but the first stage she made it thru was also borderline -30 and -30 and below...

Thanks for your two cents! I really do appreciate any input especially since this is all new to me. There is family history of cf and now I'm wondering if my Mom was misidiagnosed. She had severe GI problems( multiple hosp stays), chronic pnueomonia and pulmonary fibrosis. I will definitely...

Thanks for your two cents! I really do appreciate any input especially since this is all new to me. There is family history of cf and now I'm wondering if my Mom was misidiagnosed. She had severe GI problems( multiple hosp stays), chronic pnueomonia and pulmonary fibrosis. I will definitely...

Thanks for your two cents! I really do appreciate any input especially since this is all new to me. There is family history of cf and now I'm wondering if my Mom was misidiagnosed. She had severe GI problems( multiple hosp stays), chronic pnueomonia and pulmonary fibrosis. <br />I will...

Unfortunately the diagnosis is not up to me. This is what the CF specialist has mentioned. He keeps trying to rule out Cf but not working out that way. If she has Cf, I want to know so she can get the best care possible. Especially now since she's already had a major bowel resection surgery...

Unfortunately the diagnosis is not up to me. This is what the CF specialist has mentioned. He keeps trying to rule out Cf but not working out that way. If she has Cf, I want to know so she can get the best care possible. Especially now since she's already had a major bowel resection surgery...

Unfortunately the diagnosis is not up to me. This is what the CF specialist has mentioned. He keeps trying to rule out Cf but not working out that way. If she has Cf, I want to know so she can get the best care possible. Especially now since she's already had a major bowel resection surgery...

<P>I've already posted about this earlier but here it goes again<img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P>My daughter's colon tissue was tested after her bowel resection surgery to try to rule out CF.  CF specialist called and said her results were abnormal and it's...

<P>I've already posted about this earlier but here it goes again<img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P>My daughter's colon tissue was tested after her bowel resection surgery to try to rule out CF. CF specialist called and said her results were abnormal and it's...

<P><BR>I've already posted about this earlier but here it goes again<img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P>My daughter's colon tissue was tested after her bowel resection surgery to try to rule out CF. CF specialist called and said her results were abnormal and it's...

Her results were abnormal. Cf dr said it's what he would expect to see from a child with cf. He said she might have cf metabolic syndrome. I dont' know what he means.

Her results were abnormal. Cf dr said it's what he would expect to see from a child with cf. He said she might have cf metabolic syndrome. I dont' know what he means.

Her results were abnormal. Cf dr said it's what he would expect to see from a child with cf. He said she might have cf metabolic syndrome. I dont' know what he means.

<P>The CF specialist called today with the results of my daughter's colon tissue testing and he said it was abnormal.  Her results is what he would expect from a child with CF.  He said her colon is unhealthy and he was shocked when he was in OR at the amount of colon that had to be removed and...

<P>The CF specialist called today with the results of my daughter's colon tissue testing and he said it was abnormal. Her results is what he would expect from a child with CF. He said her colon is unhealthy and he was shocked when he was in OR at the amount of colon that had to be removed and...

<P>The CF specialist called today with the results of my daughter's colon tissue testing and he said it was abnormal. Her results is what he would expect from a child with CF. He said her colon is unhealthy and he was shocked when he was in OR at the amount of colon that had to be removed and...

My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF.  Does anyone know how long it takes to get the results back?  She had to have 28 inches of her colon removed, it was coiled on top of itself.  I read a couple of articles...

My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF. Does anyone know how long it takes to get the results back? She had to have 28 inches of her colon removed, it was coiled on top of itself. I read a couple of articles about...

<BR>My daughter had bowel resection surgery a week ago Monday and they tested part of her colon tissue to try to rule out CF. Does anyone know how long it takes to get the results back? She had to have 28 inches of her colon removed, it was coiled on top of itself. I read a couple of articles...