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Work is my life at this point. I worked 50+ hours last week. Beyond med compliance I would say sleep, stress management, airway clearance, exercise, and diet in that order. If you're doing those and still tired (but don't have an infection) look into supplements (dig into clinical studies, don't...

I don't think the numbers here tell the full story. The benefit isn't just your FEV1 + 6.1%. FEV1 of course is your clinical endpoint, but CF has a lot of intertwined mechanisms of disease. This drug should increase immunity against bugs, leading to decreased inflammation, decreased...

Prednisone decreases inflammation which allows mucus to loosen up and start to move prompting you to want to cough more. As Vaultboy said I'd characterize this kind of coughing as a "good" cough. Since the mucus is loosening it's a good opportunity to do rounds of albuterol, HTS, and airway...

Hi Kris, I've recently gone through a breakup where we were living together for 8 months. She didn't cheat on me (that I know of) but she wasn't supporting me. She was bulimic and emotionally unstable. I knew I needed to pull the plug, but hesitated for months for some of the same reasons. 2...

Interesting thread. I'd agree there's a lot of conflicting forces at work today that create the risk of unrest. Just look at the Occupy movement. Look at how we elected a democratic president and then only 2 years later the Republicans have the house. High unemployment. Stagnant wages for the...

Insurance definitely limits your options as a young adult with CF. When I was 19 I was lucky enough to land a job that included health insurance. I was only making $30k/year. I'm 23 now. I've switched jobs to make substantially more and am on my employer's health insurance plan. If I were to...

I do all my exercise and work outs immediately after I eat dinner. I like running and will typically run a mile or two a few days a week. I am trying to increase frequency and mileage while gaining weight. I am pre-diabetic so running immediately after eating helps keep blood sugars under 200...

It took me 6 months to gain 20 pounds. I went from 135 (almost underweight for my height of 5' 11") to 155. Everyone is different though. My brother also has CF. He's 6' 3" and about 200 lbs, which is borderline overweight. He looks a bit beefy. I have always struggled with weight. I had 4...

Do you ever do manual CPT on yourself? I've started trying to do 1-2 very intense airway clearance sessions per week. These last about 1-2 hours and the main component for me has been manual CPT that I perform on myself. I can reach all of my front, sides, and part of my upper back on my own...

I love the Smart Vest. I've tried 2 others (wish I could remember their names, the one I had from 6 to 20 yrs old was the old style with the black pedal you had to sit on to make it go). The Smart Vest is definitely my favorite. See what other sizes they have. If it's hurting his stomach I know...

Thanks for the link! I will definitely look into getting that machine. Looks like you may need a prescription. If I get it, I'll certainly share my findings!

I'm wondering if many people use spirometers at home and track numbers on a weekly or daily basis. I bought a Microlife spirometer back in 2010 when I was on home IVs and working my numbers back to baseline (88%) from 60% and have used it on and off since then. Since this May I've been looking...