Search results

I have three children 5,4 and 1 (crazy I know)! The one year old has CF. typical story, we had no idea it ran in either family:(. Had all three sweat tested at PCH 5 year old # was 12! 4 year old # was 17!, 1 yr old was#87:(. My question now has always been about my oldest; he has never...

Thanks! My daughter was diagnosed shortly after birth last year and since then we had the family tested and my MOM has been diagnosed. Strange but true. My mom is 59 and never been treated for CF until this month. Still a lil shocked I guess. They are using grant money to do tests on her to see...

Were u symptomatic ? Just wondering what prompted the diagnosis . We're you sick as a child and no one figured it Out , or were u not sick til later

Are you making his food or buying store bought stuff? If u have a good food processor you can get rid of textures completely and integrate then slowly. My daughter is 10 months old and I make everything that goes into her body from scratch , all organic as I did for my other two children 5 and...

Wat kinds of food does your lil pumpkin eat? Extra fat would help, pediasure instead of milk. Good for any skinny baby over 12 months , CF or not. Keep ur head up. You're doing gr8.

Was he premature? How much does he weigh currently

Sent u a private message

Sent u a private message

Done! And done

Hubby and I have three beautiful kiddos . First two are CF free and our latest addition "yes for Cf" is 6 months old and doing amazing. We had no idea we were carriers.

We have a 3 and 4 year old ( practically twins) and when our 3 baby was born and diagnosed with cf 10 days later I panicked. ( omg the other two must have it). They were screened for it at birth and we have since had them sweat tested. Sons number was 7, daughters number was 12. Baby's number...

Skincare is my profession ! It depends on where specifically you are breaking out? Or all over. Breakout are a response to how our body processes the food we eat, not the food itself( greasy foods do not make u break out for instance) CF related acne I would expect to either be on the chin which...

I sent u an enail

My husband and I have a 4 yr old and a 3 yr old without CF and a special lil 4 month old with!!! My email is Dowling.trisha@yahoo.com if u wanna chat

Thanks . She's pretty amazing. She got a cold about a week ago , green boogies, cough, light fever, the whole bit. And within 3 days she was back to normal

We already know she has CF! That's why I'm on this forum . She was diagnosed through her newborn screen at 7 days old. We've resolved the issue anyway. We switched enzymes and added a little liquid Zantac . She is gaining about an ounce a day now. She's still a lil peanut weighing in at 10lbs 12...

Make your own baby food. Most babies gag because store bought baby food is disgusting.

Rowan weighs a whopping 7 lbs 3.4 oz. still teeny tiny but quite a ways from 5 lbs 5 oz where we started . The weight is her only symptom of cf which I am thankful for. Airways are great and @ 100%, no acid reflux or spitting up, normal Breastfeeding bowl movements , sleeps great, no coughing or...

My best friends hubby is a acupuncturist and an herbologist and he has a salt room. I googled it and it has actually been shown to improve breathing in cystic fibrosis. ( quoted by a pulmonologist) anybody try this?

Why do u do 3 and not 2 treatments a day