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  1. B

    Adoption Advice Needed

    I do not have CF, but I do know about adoption. My kids are both adopted. I know that adopting privately, domestically there are less limitations on health...you just have to be able to show that if something did happen to one of you the child would be supported. Also in many areas you can...
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    Adoption Advice Needed

    I do not have CF, but I do know about adoption. My kids are both adopted. I know that adopting privately, domestically there are less limitations on health...you just have to be able to show that if something did happen to one of you the child would be supported. Also in many areas you can...
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    Adoption Advice Needed

    I do not have CF, but I do know about adoption. My kids are both adopted. I know that adopting privately, domestically there are less limitations on health...you just have to be able to show that if something did happen to one of you the child would be supported. <br /> <br />Also in many...
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    Summer Camp for CF Children

    Joseph-- You need to do some more research on this topic. Years ago kids with CF did have summer camps. They were discontinued because of infection control issues and bad bugs being passed back and forth. Infection control issues are taken very seriously in CF centers and I am sure a CF camp...
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    Summer Camp for CF Children

    Joseph-- You need to do some more research on this topic. Years ago kids with CF did have summer camps. They were discontinued because of infection control issues and bad bugs being passed back and forth. Infection control issues are taken very seriously in CF centers and I am sure a CF camp...
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    Summer Camp for CF Children

    Joseph-- <br /> <br />You need to do some more research on this topic. Years ago kids with CF did have summer camps. They were discontinued because of infection control issues and bad bugs being passed back and forth. Infection control issues are taken very seriously in CF centers and I am...
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    Mealtime Struggles

    We have exactly the same problem at our house. I have tried a ton of different things. Right now we are trying something new that is working pretty well. I went an bought a roll of tickets. I set a timer for 30 minutes. If my daughter finishes her meal in less than that she gets however...
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    Mealtime Struggles

    We have exactly the same problem at our house. I have tried a ton of different things. Right now we are trying something new that is working pretty well. I went an bought a roll of tickets. I set a timer for 30 minutes. If my daughter finishes her meal in less than that she gets however...
  9. B

    Mealtime Struggles

    We have exactly the same problem at our house. I have tried a ton of different things. Right now we are trying something new that is working pretty well. I went an bought a roll of tickets. I set a timer for 30 minutes. If my daughter finishes her meal in less than that she gets however...
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    PICC lines and recess??

    My 4 year old has had several PICC lines, we have been very careful with them all, but one did break---thankfully I was able to clamp it off before it was a problem. One also got infected. If the playground at your son's school is anything like the playground at my 6 year olds school I would...
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    PICC lines and recess??

    My 4 year old has had several PICC lines, we have been very careful with them all, but one did break---thankfully I was able to clamp it off before it was a problem. One also got infected. If the playground at your son's school is anything like the playground at my 6 year olds school I would...
  12. B

    PICC lines and recess??

    My 4 year old has had several PICC lines, we have been very careful with them all, but one did break---thankfully I was able to clamp it off before it was a problem. One also got infected. If the playground at your son's school is anything like the playground at my 6 year olds school I would...
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    stomach constantly hurts

    My daughter with CF was having the same problem...it was everyday, she would turn gray and sweaty and then curl in a ball and scream on the floor for several hours. Our GI finally did a colonoscopy and EGD and discovered that she has Celiac (gluten intolerance). Since we have been on a gluten...
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    stomach constantly hurts

    My daughter with CF was having the same problem...it was everyday, she would turn gray and sweaty and then curl in a ball and scream on the floor for several hours. Our GI finally did a colonoscopy and EGD and discovered that she has Celiac (gluten intolerance). Since we have been on a gluten...
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    stomach constantly hurts

    My daughter with CF was having the same problem...it was everyday, she would turn gray and sweaty and then curl in a ball and scream on the floor for several hours. Our GI finally did a colonoscopy and EGD and discovered that she has Celiac (gluten intolerance). Since we have been on a gluten...
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    How long do you wait to call the doctor?

    Becca I usually call after about 5 days especially if my daughter does not have a fever. Usually our Pulmonologist does not give antibiotics right away. I usually call back after about 10 days and then another few days after that until she is either better or on antibiotics.
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    How long do you wait to call the doctor?

    Becca I usually call after about 5 days especially if my daughter does not have a fever. Usually our Pulmonologist does not give antibiotics right away. I usually call back after about 10 days and then another few days after that until she is either better or on antibiotics.
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    How long do you wait to call the doctor?

    Becca <br /> <br />I usually call after about 5 days especially if my daughter does not have a fever. Usually our Pulmonologist does not give antibiotics right away. I usually call back after about 10 days and then another few days after that until she is either better or on antibiotics.
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    CF and Celiac

    My daughter had the full Elisa checked several times and it was negative. She was having such horrible tummy aches and such severe growth issues that our GI (who I love by the way...and we have fired 4 others) finally did a colonoscopy and EGD with biopsies...my daughters intestinal biopsies...
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    CF and Celiac

    My daughter had the full Elisa checked several times and it was negative. She was having such horrible tummy aches and such severe growth issues that our GI (who I love by the way...and we have fired 4 others) finally did a colonoscopy and EGD with biopsies...my daughters intestinal biopsies...
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