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    My son has not one, but two very rare mutations

    I would contact: AMBRY GENETICS CORPORATION (100 Technology Drive, Irvine, CA, 92618, US) Dunlop, Charles L. M. (2233 Martin Street, Unit 422 Irvine, CA, 92612, US) Kammescheidt, Anja (31262 Brooks Street...
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    Newborn just diagnosed and I M FREAKIN OUT

    I was doing CPTs on my son when he was just 3 weeks old with infant breathing cups. I will tell you that starting them this young was not only the best for his health but it made a huge difference on how he views this part of his treatment. We do them twice a day, morning and night. He is so...
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    Newborn just diagnosed and I M FREAKIN OUT

    Hello, I live in Tucson, AZ and I have a 3 year old son with CF. One thing I would advise you to do is to have your baby do the sweat test and the faecal elastase test. Although most people with CF are pancreatic insufficient, some of the them are pancreatic sufficient. The clinic told me I...
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    Good Bye My Sweet Prince

    I'm so sorry for your and your family are in my prayers.