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    AI Powered App could predict health care...
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    Antibody Response Affects Covid 19 in kids and adults Collecting samples from kids with cystic fibrosis....
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    5 year old with CF recovers from Covid
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    Elizabeth Nash Foundation Scholarship

    Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to the academic institution to assist in covering the cost of tuition and fees. In selecting...
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    Johns Hopkins Vaccines Report US STATES
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    Our Survey Results!
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    Covid19 vaccine and CF
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    Can Autoimmune Antibodies Explain Blood Clots in COVID-19? Dr Francis Collins

    From Francis Collins Blog: For people with severe COVID-19, one of the most troubling complications is abnormal blood clotting that puts them at risk of having a debilitating stroke or heart attack. A new study suggests that SARS-CoV-2, the coronavirus that causes COVID-19, doesn’t act alone in...
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    Crispr! Can it Repair CFTR

    Can CRISPR Repair CFTR in Cystic Fibrosis Patients? Read More:
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    from Dr Francis Collins Blog
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    Vertex joins with Moderna

    Follow the Link to read Vertex Joining with Moderna to form a gene editing pact for Cystic Fibrosis
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    from Dr Francis Collins Blog Coronaviruses are a frequent cause of the common cold. Most of us bounce back from colds without any lasting health effects. So, you might think that individuals who survive other...
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    tattoos on our FB page

    Thanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!
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    from Dr Francis Collins Blog

    It is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that causes COVID-19, continues to spread across many states and reaches into both urban and rural communities. This growing community spread is hard to track...
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    Eyes Burning on Trikafta

    I am so sorry about this LJ!
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    Eyes Burning on Trikafta

    Oh Windex! So glad you are back. Of course you are a LONG TIME member...I will report this mistake to Jim. Best of luck with your eye surgery and prayers for a successful recovery!
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    Francis Collins speaks of Covid Vaccines and Faith

    Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff!
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    NHS England agrees deal for Vertex CF Triple

    NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug. The deal means that CF patients in England will be among the first in Europe to access Kaftrio...
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    NHS England agrees deal for Vertex CF Triple!
  20. I even I have a hard time reading these forums! Of course I am shocked and saddened... even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in south Jersey. I always respected her opinion! And I am so sorry, I am just seeing this now. I would love to reach out to her family, her daughters especially. my...