Search results

  1. G

    Infant diagnosed-Confused-Hurting

    Currently my little girl is 5 months old now! We have had 3 throat cultures over the last 3 months and they all have come back with MRSA. Our Dr didn't even tell us about it until we went back the following month. We are treating it with bactrim daily. We currently go to Tulane Medical Center...
  2. G

    The type of bacteria growing in CF lungs correlates with how viscous the mucus is

    I have a 4 month old cf and her throat culture came back with MRSA. We started her on antibiotics and hope it clears it up. What kind of effects is this having on your body? Has anything helped to rid the infection?
  3. G

    CPT for 2 month old baby

    I have a 4 month old, we do the cpt on her and she hates it. Screams at the top of her lungs. I know someone who's son is now 1 years old and they said they used a vibrating massager for his cpt. Does anyone else use this or would you recommend it?
  4. G

    Infant diagnosed-Confused-Hurting

    I am still trying to understand these mutations 551_555delTTTCC and R1066C (c.3196C). Is there a site to go to that explains these mutations. Our Doctor tries to explain but it is so overwhelming when we are there and I try not to become to emotional. I would like to find somewhere i could...
  5. G

    Infant diagnosed-Confused-Hurting

    Thank you all for your experiences! I am really glad I found this site. I will try to take it one day at a time and be as strong as possible. All of you have sent very encouraging words! I am sure I will have more concerns as they arise.
  6. G

    Infant diagnosed-Confused-Hurting

    My two month old has officially now been diagnosed with CF. We have been having all the tests done and patiently waiting the results. She has two mutations one is in the top 40 the other there is only one known in the data base. We have met with the specialist Dr, Nurtionist, Respiratory...