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Sorry I meant to say I understand one of her primary focus is in CF Pancreatitis

Sorry, double post.

I know you dont sound too hip on traveling for Mayo but my CF doc recently told me to see Dr. Michelle Lewis (GI doc) at Mayo Clinic in Jacksonville, Florida. From what I have heard she is very good and specializes in CF GI issues. Especially enzyme issues. She has some CF research under her...

Thank you so much for posting this. Dr. Schwartzmann was my pediatric CF doc when we first moved to Florida and lived in Boca. He was at the UM CF clinic back then (Early 1970's). He was my physician during my early school years, ages 3-8. I remember, he use to tell my mother that she and my...

Thank you so much for posting this. Dr. Schwartzmann was my pediatric CF doc when we first moved to Florida and lived in Boca. He was at the UM CF clinic back then (Early 1970's). He was my physician during my early school years, ages 3-8. I remember, he use to tell my mother that she and my...

Good thoughts Jenn. I had not thought about the fact that there was no part D when Tobi came out and probably the same for Pulmozyme too. It makes me wonder if Cayston will ever be covered under part B, since there is now a specific program for Drug coverage.

Good thoughts Jenn. I had not thought about the fact that there was no part D when Tobi came out and probably the same for Pulmozyme too. It makes me wonder if Cayston will ever be covered under part B, since there is now a specific program for Drug coverage.

Thank you all for your responses. I think my part D will cover it, just not sure at what %. I cant believe this Donut hole thing was ever a good idea. Those of us with CF have had to deal with complex insurance issues our whole life. We are usually well versed and can easily understand the ins...

Thank you all for your responses. I think my part D will cover it, just not sure at what %. I cant believe this Donut hole thing was ever a good idea. Those of us with CF have had to deal with complex insurance issues our whole life. We are usually well versed and can easily understand the ins...

Yes, but... http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=39692 the article sited in this thread is unavailable but there have been other articles about cepacia in distilled water. So it is 6 of one and a half dozen of the other. Hard to say what to do. I use both (tap for...

Yes, but... http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=39692 the article sited in this thread is unavailable but there have been other articles about cepacia in distilled water. So it is 6 of one and a half dozen of the other. Hard to say what to do. I use both (tap for...

Hi everyone, Have not posted in a while and hope 2012 is treating you all well so far. I am trying to understand Cayston and Medicare. Seems like I have heard from some that Cayston is covered under part B and others tell me they are covered under part D. If you are on Cayston and covered...

Hi everyone, Have not posted in a while and hope 2012 is treating you all well so far. I am trying to understand Cayston and Medicare. Seems like I have heard from some that Cayston is covered under part B and others tell me they are covered under part D. If you are on Cayston and covered...

Jen, I reviewed the Medicare booklet "Choosing a Medigap Policy" extensively. I have been to the medicare site numerous times (found medigap and D plans and insurance companies there)& I called medicare directly and guess what? The rep said she did not know about switching for people under 65...

Jen, I reviewed the Medicare booklet "Choosing a Medigap Policy" extensively. I have been to the medicare site numerous times (found medigap and D plans and insurance companies there)& I called medicare directly and guess what? The rep said she did not know about switching for people under 65...

Jen, <br />I reviewed the Medicare booklet "Choosing a Medigap Policy" extensively. I have been to the medicare site numerous times (found medigap and D plans and insurance companies there)& I called medicare directly and guess what? The rep said she did not know about switching for people...

Thanks for all your responses & yes yes more questions! 1. Had an agent tell me that since I am under 65 & on medicare that I would not be able to switch medigap plans or providers until I am 65. Is this true?? She said that if I wanted to change to another medigap plan I would have to do it...

Thanks for all your responses & yes yes more questions! 1. Had an agent tell me that since I am under 65 & on medicare that I would not be able to switch medigap plans or providers until I am 65. Is this true?? She said that if I wanted to change to another medigap plan I would have to do it...

Thanks for all your responses & yes yes more questions! <br /> <br />1. Had an agent tell me that since I am under 65 & on medicare that I would not be able to switch medigap plans or providers until I am 65. Is this true?? She said that if I wanted to change to another medigap plan I would have...

Go for it! Congrats! If your CF becomes more complicated and more challenging many many years down the road.... the STD, LTD and if needed SSD will kick in. Working is an invaluable life choice - there is so much to gain - way beyond just the income.