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Thank you for all the advice and ideas. Have any of you ever been given Intramuscular 4mg Dialudid (hydromorphone) shots to give yourself at home? I have been rx'ed this. When in intense pain, I give myself an injection in the rear-end and I am feeling a million times better within minutes...

I have waited well over 40 minutes for things in a hospital before...and yes, I was pushing the call button every 5 min and sending my husband down to the nurses station. Most of us do understand that we are not the nurse's only patient...and by no means did I interpret that Murgie suggested her...

Have they ever given you anything for anxiety beforehand? I have not experienced that feeling with a PICC line, but I have with other procedures and it is usually anxiety. I hope you get it figured out! That would be a horrible feeling to have associated with something that is supposed to help...

Thank you everyone for your advice! I called yesterday (Friday) and begged for some help/relief. They did see me and I got on the Zofran for my nausea and they adjusted my meds. Ahhhh, sweet relief. Sara- Wow, thank you for sharing your story with me. I do agree, I have always been one to steer...

It has been quite awhile since I have posted here. Last fall I took the advice of my Rheumatologist and saw a pain management specialist. I am in constant pain. I wake and my joints burn, my muscles hurt across my chest and back- IBprofin just did not cut it anymore, I was taking more Prenisone...

I am all over the place. I am DDF508, 29- If you look back to the comment I wrote in June I was 93%. At clinic this past week I was 77%- a high from December when I was at 65%. I am 5'6" and about 135lbs. When I was 18 I always blew well into the 120%.

I am all over the place. I am DDF508, 29- If you look back to the comment I wrote in June I was 93%. At clinic this past week I was 77%- a high from December when I was at 65%. I am 5'6" and about 135lbs. When I was 18 I always blew well into the 120%.

I know that all of us here understand just how hard it is some days to accomplish what we do- with the body we were given to do it. There are days I do not want to get out of bed- let alone, get up at 6 am, get my 6 year old and 3 year old fed/dressed, drive my 6 y/o to school, come home and...

I know that all of us here understand just how hard it is some days to accomplish what we do- with the body we were given to do it. There are days I do not want to get out of bed- let alone, get up at 6 am, get my 6 year old and 3 year old fed/dressed, drive my 6 y/o to school, come home and...

<P>Here is mine: Top one is taken in a mirror-so it is reversed. This is what mine looks like accessed. The bottom one is how mine looks when it isn't accessed. You can see the scar right under my necklace- up by my neck- where they tunneled in. I think my neck hurt more- and for longer- than my...

<P>Here is mine: Top one is taken in a mirror-so it is reversed. This is what mine looks like accessed. The bottom one is how mine looks when it isn't accessed. You can see the scar right under my necklace- up by my neck- where they tunneled in. I think my neck hurt more- and for longer- than my...

How do you add a photo? If you are still looking for photos....mine is a little different and sticks out more.

How do you add a photo? If you are still looking for photos....mine is a little different and sticks out more.

I was dead set against a port. Partially from being scared, the other was denial, or thinking it meant I was giving up or getting worse. I got my port about 2 years ago. It was tender for the first few weeks. After that, I didn't even realize it was there until it was accessed. Mine is in my...

I was dead set against a port. Partially from being scared, the other was denial, or thinking it meant I was giving up or getting worse. I got my port about 2 years ago. It was tender for the first few weeks. After that, I didn't even realize it was there until it was accessed. Mine is in my...

....and remember, our Doctors work for US, not the other way around. If you don't feel that your CF doc is listening to your needs, I would speak-up or find a new one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

....and remember, our Doctors work for US, not the other way around. If you don't feel that your CF doc is listening to your needs, I would speak-up or find a new one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I have one and my FEV1 is currently at 64%, but has been as high as the 90's and as low as the 50's - I do bounce around. I rarely ever use it. One of the few times it gets put to use is when my joints are so sore and I cannot hardly walk across the hospital parking garage- or if I am extremely...

I have one and my FEV1 is currently at 64%, but has been as high as the 90's and as low as the 50's - I do bounce around. I rarely ever use it. One of the few times it gets put to use is when my joints are so sore and I cannot hardly walk across the hospital parking garage- or if I am extremely...

I am wanting to drive a semi now too....haha. I feel as though when I am told I can't because of CF, I try a million times harder until I do. And I always do. I think that is the amazing thing about us. I have never met someone with CF who doesn't give mostly everything in life 110% plus some.