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It's been a while, so y'all may have forgotten about me. The last I wrote, she tested neg. for cf but I just wanted to let you now how she was doing. She will be one year old on Aug. 17th and is over 20 lbs! Her poop is still messed up and she still breathes real raspy and snores very loud at...

I know it has been a while since I've been on the site, so I can't quite remember if I told everyone she tested negative in 2 sweat tests and blood tests for cf. So we proceeded to test for everything else. X-rays...more blood...they did a swallow-function test to see why she couldn't eat...

I think I made a mistake about IBS being a symptom of Celiac's disease. I may have read it wrong. Sorry about that. Also, and I don't mean this mean, but I have been told NOT to give my children Karo syrup or mineral oil anymore b/c it has been suspected to cause Botulism like honey can. I used...

Well, I finally got a hold of someone at the drs. office and the nurse said her sweat test and Ambry test came back negative for any mutations. I don't know if I'm happy or not b/c now I don't know where to start over. I feel like a fool b/c I was so determined that it was cf and wouldn't let...

To Susan: I forgot what the Ambry test was...But her practitioner could reccomend it. I've seen Dr.Lyrene and I liked him. We saw him in the beginning before she had more symptoms and he dx her with Laryngomalacia which 90% of children have. That was what we thought her breathing problems...

Someone couldn't remeber my story, so I'm going to sum it up b/c it's long. At birth she was fullterm and 4 days late. She came out 6 lbs 8 oz. They said healthy, I said different. Her left foot was turned to the left at a 90 degree angle and her chest sank in so far you could see her ribs when...

I was reading about candles and was wondering if perfume bothers anyone with cf? Or airfresheners for that matter? Madelyn is always sick so I can't pinpoint anything with her. What about animals, or laundry det.?

Madelyn now weighs about 16lbs and is 7 mths old. She still keeps fluid on both lungs though. The pulmacort makes her cough and choke really bad but they said that was good. She's on antibiotics constantly though and it worries me that soon they will be useless. One question though...after...

We just gave Madelyn baby food for the first time a week ago and she kept choking on it and coughing it up with a lot of mucus. She finally started refusing it. She's almost 6 mths though and needs to start eating more. Any suggestions?

We just gave Madelyn baby food for the first time a week ago and she kept choking on it and coughing it up with a lot of mucus. She finally started refusing it. She's almost 6 mths though and needs to start eating more. Any suggestions?

Madelyn is on Pulmacort & Prevacid. But I was reading earlier that pulmacort was for 12 mths and older. Is it going to be okay for her? Has anyone ever had any problems? She is only 5 1/2 mths old. Also, I'm still having trouble with her poop. That baby has diaper rash so bad she is bleeding. No...

Madelyn is on Pulmacort & Prevacid. But I was reading earlier that pulmacort was for 12 mths and older. Is it going to be okay for her? Has anyone ever had any problems? She is only 5 1/2 mths old. Also, I'm still having trouble with her poop. That baby has diaper rash so bad she is bleeding. No...

Congratulations! Kids are the best thing in the world! Don't stress about it too much b/c it takes time. I do have a few invasive questions if you don't mind. Did the CF make your husband infertile or was it just hard for you to get pregnant? If they use a man's sperm for IVF can they pick out...

Congratulations! Kids are the best thing in the world! Don't stress about it too much b/c it takes time. I do have a few invasive questions if you don't mind. Did the CF make your husband infertile or was it just hard for you to get pregnant? If they use a man's sperm for IVF can they pick out...

Well, Madelyn had a sweat test today & they said that 40 was borderline....she was a 9! He said it was perfect. He said he was going to send her to a G.I. specialist about her bowel movements and then I remembered about the rectal prolapse. I had allready told other things and he said it really...

Madelyn hasn't been diagnosed yet. Even if she comes out negative there are still things we have to work on. First, her poop is yellow,oily and in the shapes of like, a million bb's. I was reading earlier about some of your children being on alimentum. She is on Nutramigen( which is for milk...

first of all, thanks evryone for replying. we live in Pell City, so we did go to Bham @ childrens. She saw Dr. Lyrene after her first trip to the ER & I really liked him. He was the first Dr. to ever praise me for knowing so much about my child. He diagnosed her with Laryngomalacia from an xray...

My daughter hasn't been diagnosed with cf. But I've been researching, so please forgive me for being ignorant. But why can't kids with cf play with each other? Do they have more germs than a kid without cf?

My daughter is almost 5 mths old & has been in the hospital 3 times for lung infections. We live in Alabama & children's Hospital is supposed to be the best. Well, they said they tested her for cystic fibrosis. They didn't. She is on medicaid and the doctors heve been dragging their feet. She...