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Thanks for the reply. Unfortunaletly , returning to the pediatric side of the equation is not an option , or at least not one the pediatric care side is willing to discuss. Seems to me there is internal politics going on but that is my opinion. We approached the pediatric side and they said they...

THANKS FOR THE VOTE OF CONFIDENCE. MY REAL CONCERN IS THAT I FEEL THAT THE CHANGE IN DOCS AND HER OVERALL TREATMENT HAS RESULTED IN THE OVERALL POOR RESULTS. SHE DID WELL HER FIRST YEAR IN COLLEGE AND WE FELT THAT THE DOWNTURN SHE EXPERICNED LAST SUMMER WHEN SHE SWIRCHED TO ADULT CFF DOC WOULD...

I am a 46 yr old father with a 19 yr old cf daughter. She lives at college 4 hrs away. She was treated atchildrens hospital treatment center with good results until last 8 months. currently in transition from pediatric care to adult care doctor. pft's have dropped almost 50 percent in last 12...