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  1. M

    Terminating pregnancy?

    I am the mother of a beautiful 19 month old little girl who has CF. She is doing so well and has adjusted to all her treatments like they are just part of any other day. Please keep in mind that a child diagnosed with CF today has such a great outlook. There are so many new drugs in the...
  2. M

    Terminating pregnancy?

    I am the mother of a beautiful 19 month old little girl who has CF. She is doing so well and has adjusted to all her treatments like they are just part of any other day. Please keep in mind that a child diagnosed with CF today has such a great outlook. There are so many new drugs in the...
  3. M

    Terminating pregnancy?

    I am the mother of a beautiful 19 month old little girl who has CF. She is doing so well and has adjusted to all her treatments like they are just part of any other day. Please keep in mind that a child diagnosed with CF today has such a great outlook. There are so many new drugs in the...
  4. M

    Terminating pregnancy?

    I am the mother of a beautiful 19 month old little girl who has CF. She is doing so well and has adjusted to all her treatments like they are just part of any other day. Please keep in mind that a child diagnosed with CF today has such a great outlook. There are so many new drugs in the...
  5. M

    Terminating pregnancy?

    I am the mother of a beautiful 19 month old little girl who has CF. She is doing so well and has adjusted to all her treatments like they are just part of any other day. Please keep in mind that a child diagnosed with CF today has such a great outlook. There are so many new drugs in the...
  6. M

    Very scared Dad!

    Welcome kaylasdad. I had tears in my eyes reading you post as like everyone said it brought back a lot of memories of when my daughter was diagnosed at 2 weeks old. And you need to cry. Cry as much as you want. It is such a scary time when you first find out. I remember crying every day...
  7. M

    Very scared Dad!

    Welcome kaylasdad. I had tears in my eyes reading you post as like everyone said it brought back a lot of memories of when my daughter was diagnosed at 2 weeks old. And you need to cry. Cry as much as you want. It is such a scary time when you first find out. I remember crying every day...
  8. M

    Very scared Dad!

    Welcome kaylasdad. I had tears in my eyes reading you post as like everyone said it brought back a lot of memories of when my daughter was diagnosed at 2 weeks old. And you need to cry. Cry as much as you want. It is such a scary time when you first find out. I remember crying every day...
  9. M

    Very scared Dad!

    Welcome kaylasdad. I had tears in my eyes reading you post as like everyone said it brought back a lot of memories of when my daughter was diagnosed at 2 weeks old. And you need to cry. Cry as much as you want. It is such a scary time when you first find out. I remember crying every day...
  10. M

    Very scared Dad!

    Welcome kaylasdad. I had tears in my eyes reading you post as like everyone said it brought back a lot of memories of when my daughter was diagnosed at 2 weeks old. And you need to cry. Cry as much as you want. It is such a scary time when you first find out. I remember crying every day...
  11. M

    Pulmozyne for my 18 month old

    At our CF clinic they actually do a pretty reliable PFT on infants/toddlers. They sedate them and the whole test is done while she is sleeping/sedated. It takes about 2 hours. They are placed in a chamber with a mask on and vest on that constricts the lungs. Through all this they are able to...
  12. M

    Pulmozyne for my 18 month old

    At our CF clinic they actually do a pretty reliable PFT on infants/toddlers. They sedate them and the whole test is done while she is sleeping/sedated. It takes about 2 hours. They are placed in a chamber with a mask on and vest on that constricts the lungs. Through all this they are able to...
  13. M

    Pulmozyne for my 18 month old

    At our CF clinic they actually do a pretty reliable PFT on infants/toddlers. They sedate them and the whole test is done while she is sleeping/sedated. It takes about 2 hours. They are placed in a chamber with a mask on and vest on that constricts the lungs. Through all this they are able to...
  14. M

    Pulmozyne for my 18 month old

    At our CF clinic they actually do a pretty reliable PFT on infants/toddlers. They sedate them and the whole test is done while she is sleeping/sedated. It takes about 2 hours. They are placed in a chamber with a mask on and vest on that constricts the lungs. Through all this they are able to...
  15. M

    Pulmozyne for my 18 month old

    At our CF clinic they actually do a pretty reliable PFT on infants/toddlers. They sedate them and the whole test is done while she is sleeping/sedated. It takes about 2 hours. They are placed in a chamber with a mask on and vest on that constricts the lungs. Through all this they are able to...
  16. M

    Hi! A lurker becomes a member!

    Mom2haydie- Thanks for the information. We go in next week to see the doctor so I will definitely ask about it. I like the approach you took to getting her used to the vest. I will have to remember that. And please feel free to email me as well if you ever want to chat or have questions...
  17. M

    Hi! A lurker becomes a member!

    Mom2haydie- Thanks for the information. We go in next week to see the doctor so I will definitely ask about it. I like the approach you took to getting her used to the vest. I will have to remember that. And please feel free to email me as well if you ever want to chat or have questions...
  18. M

    Hi! A lurker becomes a member!

    Mom2haydie- Thanks for the information. We go in next week to see the doctor so I will definitely ask about it. I like the approach you took to getting her used to the vest. I will have to remember that. And please feel free to email me as well if you ever want to chat or have questions...
  19. M

    Hi! A lurker becomes a member!

    Mom2haydie- Thanks for the information. We go in next week to see the doctor so I will definitely ask about it. I like the approach you took to getting her used to the vest. I will have to remember that. And please feel free to email me as well if you ever want to chat or have questions...
  20. M

    Hi! A lurker becomes a member!

    Mom2haydie- Thanks for the information. We go in next week to see the doctor so I will definitely ask about it. I like the approach you took to getting her used to the vest. I will have to remember that. And please feel free to email me as well if you ever want to chat or have questions...
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