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Hi briarrose, she was tested for celiac (blood test only) and it was normal but I was told this isn't a terribly accurate way to test for celiac. She does have MPI as she has a severe milk allergy but she does not consume any dairy, even hidden dairy in foods.

Thanks. What would be the signs of a CF flare up, so I know what to watch for?

Hi everyone. I've posted before here about my daughter who is 2.5 years old. She has a history of loose, increasingly frequent stools that seem to worsen when she eats a high-fat diet. However she is growing quite well-- 70% for weight, 60% for height at last check. Her appetite is high. She has...

Well, that's the problem... her doctor(s) won't refer me to a CF specialist because they don't feel it's warranted. This includes the pediatric GI who works in conjunction with the CF clinic. (By way of background, where I live, there's one local CF clinic with CF specialists, but they operate...

Hi everyone. My daughter is nearly 2.5 years old and recently I have begun to suspect CF. She eats and eats and eats (a LOT-- often more or the same quantities as me) but gains weight more slowly than I would think her diet would require. Her weight is currently good (70% percentile) but her...

Trying to figure out how concerned to be. My daughter occasionally tastes salty around her forehead in the mornings (assumably from sweat near her hairline where she lays on the pillow). Also, when she cries, her tears sometimes "crystallize" into white tracks on her face if they're not wiped...