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I to have never heard of this classification of mutations (like Angelo). Please explain. I am glad to hear the Kalydeco off brand is working for you in such a tremendous way. Please keep us updated with your improvement. Thank you

Fourkidsmom, Since you have had the same experience I have had (young infant culturing PA) I am very interested in your advice. I have been going out of my mind trying to combat PA. I have not even though about cepecia, is cepecia airborne? Is it like PA in the fact that it is everywhere...

Fourkidsmom, Since you have had the same experience I have had (young infant culturing PA) I am very interested in your advice. I have been going out of my mind trying to combat PA. I have not even though about cepecia, is cepecia airborne? Is it like PA in the fact that it is everywhere...

Fourkidsmom, Since you have had the same experience I have had (young infant culturing PA) I am very interested in your advice. I have been going out of my mind trying to combat PA. I have not even though about cepecia, is cepecia airborne? Is it like PA in the fact that it is everywhere...

Fourkidsmom, Since you have had the same experience I have had (young infant culturing PA) I am very interested in your advice. I have been going out of my mind trying to combat PA. I have not even though about cepecia, is cepecia airborne? Is it like PA in the fact that it is everywhere...

Fourkidsmom, Since you have had the same experience I have had (young infant culturing PA) I am very interested in your advice. I have been going out of my mind trying to combat PA. I have not even though about cepecia, is cepecia airborne? Is it like PA in the fact that it is everywhere...

Kim, Thank you for writting, I am having a hard time being strong right now. Your post does help me realize how essential a positive attitude is. You are so right about having the advanced drugs now, it is a comfort being able to dismiss tragic stories due to the fact that the patient had the...

Kim, Thank you for writting, I am having a hard time being strong right now. Your post does help me realize how essential a positive attitude is. You are so right about having the advanced drugs now, it is a comfort being able to dismiss tragic stories due to the fact that the patient had the...

Kim, Thank you for writting, I am having a hard time being strong right now. Your post does help me realize how essential a positive attitude is. You are so right about having the advanced drugs now, it is a comfort being able to dismiss tragic stories due to the fact that the patient had the...

Kim, Thank you for writting, I am having a hard time being strong right now. Your post does help me realize how essential a positive attitude is. You are so right about having the advanced drugs now, it is a comfort being able to dismiss tragic stories due to the fact that the patient had the...

Kim, Thank you for writting, I am having a hard time being strong right now. Your post does help me realize how essential a positive attitude is. You are so right about having the advanced drugs now, it is a comfort being able to dismiss tragic stories due to the fact that the patient had the...

I would like to thank everyone for chiming in with their experiences. I am sure you all understand my fear being a parent to a newborn w/ CF and culturing PA already. I am really scared and I just cannot stop thinking about my boy's future and how uncertain it is. I know this is the wrong...

I would like to thank everyone for chiming in with their experiences. I am sure you all understand my fear being a parent to a newborn w/ CF and culturing PA already. I am really scared and I just cannot stop thinking about my boy's future and how uncertain it is. I know this is the wrong...

I would like to thank everyone for chiming in with their experiences. I am sure you all understand my fear being a parent to a newborn w/ CF and culturing PA already. I am really scared and I just cannot stop thinking about my boy's future and how uncertain it is. I know this is the wrong...

I would like to thank everyone for chiming in with their experiences. I am sure you all understand my fear being a parent to a newborn w/ CF and culturing PA already. I am really scared and I just cannot stop thinking about my boy's future and how uncertain it is. I know this is the wrong...

I would like to thank everyone for chiming in with their experiences. I am sure you all understand my fear being a parent to a newborn w/ CF and culturing PA already. I am really scared and I just cannot stop thinking about my boy's future and how uncertain it is. I know this is the wrong...

Froggymamma How often is your little one taking TOBI each day? I hope everything works out for you guys. It seems that there are alot of success stories associated with little ones and TOBI treatments.

Froggymamma How often is your little one taking TOBI each day? I hope everything works out for you guys. It seems that there are alot of success stories associated with little ones and TOBI treatments.

Froggymamma How often is your little one taking TOBI each day? I hope everything works out for you guys. It seems that there are alot of success stories associated with little ones and TOBI treatments.

Froggymamma How often is your little one taking TOBI each day? I hope everything works out for you guys. It seems that there are alot of success stories associated with little ones and TOBI treatments.