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Same here. Bad thing is, you really can't get pushy with them. They'll either participate or not. Everyone always asks "how did the clinic visit go" or "how is she doing" but they never offer participation. Every Valentine's Day there's a concert benefiting the CF Foundation. I always bring...

Listen to your doctor: make a list of questions because when you get there Tuesday, your mind will go out the window and you'll forget everything. And don't be afraid to ask the questions. Don't feel like you're burdening the doctor. In the meantime, go to www.cff.org which is the Cystic...

I know exactly what you're going through. Our daughter just turned 9. She's 4'4" and weighs 57 pounds. The nutritionist that we work with is a nightmare. I finally had it out with her on our last visit. She kept telling us about how my husband and I are "failing" at giving our daughter the...