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<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Jen, thanks for that. New the information was out there but didnt' remember the name. Julie<hr></blockquote> No problem, Julie!! It was actually kind of nice to have an answer here and not another question for a...

Hi ... I am also feeling like my son's sweat test maybe incorrect. A lot of people here suggest the blood test that is done by Ambry Genetics. They do take various types of insurance. Their webite is<a target=new class=ftalternatingbarlinklarge href="http://www.ambrygenetics.com">Ambry...

I had Zach to the Ped this morning for a weight check, which I insisted on. He did gain almost a half pound in the last two weeks since the doctor has me mixing his formula differently and adding cereal to it as well. When I asked AGAIN about his cough that makes him sound almost as if he has...

<blockquote>Quote<br><hr><i>Originally posted by: <b>shamrock</b></i><br>Hi guys went to clinic today, my weight is up!<img src="i/expressions/face-icon-small-happy.gif" border="0"> but am still not on the chart yet but am VERY close! my dietition was happy but the new student doctor wasn't so...

I see a lot of posts that refer to a G-tube. I only have a vague idea of what it is, so please pardon my ignorance, but exactly what is it, and how common is it for kids with CF to have one? Is the tube in permanently? <img src="i/expressions/face-icon-small-blush.gif" border="0"> Thank you!

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>who makes nutramigen?? Thanks<hr></blockquote> It is made by the same company as Enfamil.

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Ok i have a question.. my son is 3.5 wcf he is currently going to preschool.. when i first signed him up it was a small preschool and he was only in contact with about 6-8 kids.. they currently bought a bigger building and...

Zach was on the 50th percentile for both height and weight at birth. He was 7 lbs. 13.5 ounces and 20 and 3/4 inches long. At his 2 month check up this past Tuesday, he weighed 8 lbs, 8 ounces and was 22 inches long ... 5th percentile. <img src="i/expressions/face-icon-small-sad.gif" border="0">

<img src="i/expressions/face-icon-small-happy.gif" border="0">I also either carry the baby in the carrier or have my 3 year old with me. LOL, she flips out if anyone goes near one of "her" babies, so they don't get close enough to touch them!! <img src="i/expressions/face-icon-small-wink.gif"...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Jen, next time try to get in with a CF doctor who sees babies instead of your pediatrician. Even though pediatricians are doctors and have done all the schooling, they seem to have a serious lack of education when it...

The thing is that everyone here for the most part all want to just accept that there isn't anything wrong with him. His Dad even had the audacity to tell me that I am "wishing it" on him and "jinxing him". I am trying so hard not to obsess over every little thing with him, but there is something...

<blockquote>Quote<br><hr><i>Originally posted by: <b>LindseyRose</b></i><br>Did you have the testing done at a CF center?<hr></blockquote> Yes, at the Womens and Childrens Hospital of Buffalo.

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Just wandering if you'd received the results of your ds's sweat chloride test yet? Prayers for negative! Please let us know. THanks!<hr></blockquote> Hi ... sorry I haven't posted anything sooner, and thanks for asking...

No offense taken at all ... 4 of the 6 have the same Dad, the other 2 are from another relationship. From what I found out today, he tested positive for one mutation on the screen, 394DELTT. From what I have found out, this is from the area that my ancestors came from (so we are *guessing* that...

Hello, my name is Jen and I am a Mom of six kids, ages 14 to 5 weeks. I found out on Thursday that my youngest son, Zach, tested positive in his newborn screening for CF ... neither Dad or I knew we were carriers. He has his sweat test on Tuesday morning at Buffalo Children's Hospital. I have...