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Hello, I am writing for some knowledge on feeding tubes. I have 15 yr old twin boys with CF and they are really having trouble with weight gain. Our CF clinic pushes the feeding tube at every visit. Our boys had feeding tubes at age 8 which was a true nightmare and are refusing to even...

Thanks for all the information. I know thata decision has to be made soon and it really helps hearing from those that have been through the same ordeals.

Thanks for all the information. I know thata decision has to be made soon and it really helps hearing from those that have been through the same ordeals.

Thanks for all the information. I know thata decision has to be made soon and it really helps hearing from those that have been through the same ordeals.

Hello everyone, I posted yesterday about poor weight gain and recieved some great advice. Now I was wondering if some of you can tell us the pros and cons of the tube. Can you get the micki button first or do you have to have the long g-tube then go to the micki button? I know there are...

Hello everyone, I posted yesterday about poor weight gain and recieved some great advice. Now I was wondering if some of you can tell us the pros and cons of the tube. Can you get the micki button first or do you have to have the long g-tube then go to the micki button? I know there are...

Hello everyone, I posted yesterday about poor weight gain and recieved some great advice. Now I was wondering if some of you can tell us the pros and cons of the tube. Can you get the micki button first or do you have to have the long g-tube then go to the micki button? I know there are...

Thanks for your response. When we went back to have the tubes changed to the micki they took our first son back and put him to sleep only to discover that they did not have the button there to replace. So the doctor placed a shorter version and told us he would see us in his office the next...

Thanks for your response. When we went back to have the tubes changed to the micki they took our first son back and put him to sleep only to discover that they did not have the button there to replace. So the doctor placed a shorter version and told us he would see us in his office the next...

Thanks for your response. When we went back to have the tubes changed to the micki they took our first son back and put him to sleep only to discover that they did not have the button there to replace. So the doctor placed a shorter version and told us he would see us in his office the next...

Thanks so much. We have to go back to the clinic in two months and I guess we will make a decision then. I am just trying to research as much as possible. I want to do what's best for him and that just may be the feeding tube again.

Thanks so much. We have to go back to the clinic in two months and I guess we will make a decision then. I am just trying to research as much as possible. I want to do what's best for him and that just may be the feeding tube again.

Thanks so much. We have to go back to the clinic in two months and I guess we will make a decision then. I am just trying to research as much as possible. I want to do what's best for him and that just may be the feeding tube again.

Thanks so much for the comments. Im not sure if he is just not eating because he has that control or if he just doesnt want it. He has had several digestive test this month and they could not find any logical reason for him not eating. We are on periactin (sp??) an appetite stimulant right...

Thanks so much for the comments. Im not sure if he is just not eating because he has that control or if he just doesnt want it. He has had several digestive test this month and they could not find any logical reason for him not eating. We are on periactin (sp??) an appetite stimulant right...

Thanks so much for the comments. Im not sure if he is just not eating because he has that control or if he just doesnt want it. He has had several digestive test this month and they could not find any logical reason for him not eating. We are on periactin (sp??) an appetite stimulant right...

Hello Everyone, It has been a while since I have posted but I knew where to come with this problem. I have twin (thirteen year old boys) that really need to gain some weight. Jordan only weighs 58 pounds and has been in the hospital twice this month with bactrial infections. We had feeding...

Hello Everyone, It has been a while since I have posted but I knew where to come with this problem. I have twin (thirteen year old boys) that really need to gain some weight. Jordan only weighs 58 pounds and has been in the hospital twice this month with bactrial infections. We had feeding...

Hello Everyone, <br />It has been a while since I have posted but I knew where to come with this problem. I have twin (thirteen year old boys) that really need to gain some weight. Jordan only weighs 58 pounds and has been in the hospital twice this month with bactrial infections. We had...

Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We...