Search results

My name is Jacqueline. I have a daughter who will be 6 next month and will start kalydeco on her birthday. Found out she had CF with the newborn screening..very scary i was only 16 at the time. But now she is 5 she does her treatments with hardly any fuss..includding her enzymes((Which she has...

My grandaughter also was very small, only 5 pounds 10 ounces. She did not gain weight and never seemed satisfied when we fed her. After receiving enzymes the difference was amazing. One of the things that made us uncomfortable was going out to eat. We always felt uncomfortable about people...

I first want you to know everything will work out for the best. You are truely blessed. I can hardly believe your story it is so much like mine. At the age of 43 my 16 year old daughter also had a baby with CF. It was very scary until we became educated and quit listening to people who did not...