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Hi evarestos, Sorry to hear about all that you are going through. I was diagnosed with pancreatitis 1 1/2 years ago. The doctors thought it could be caused from cystic fibrosis. I did all of the DNA tests and they came back negative. Now the doctors will NOT do the sweat test, and I read...

It is good that the doctor has the test ordered and ready if needed. Hopefully the baby is born healthy and you can just enjoy him/her. My kids are in high school so I have some time before I become a grandma but from what I have heard it is a very nice experience.

believingjesus, I hope you get the testing needed for your son so that you get peace of mind about your grandchild. Even if the results are positive, it will be good to know as early as possible so your son and girlfriend can be prepared. Best wishes. Melissa

believinginjesus, I recently came to this forum and found it a nice change of pace. All of the posts I read were very supportive and very pleasant to read. I don’t post very often (asking questions or responding). I like to read a lot. When I signed up for this site, there wasn't anything...

I talked to the genetist at the CF center on the phone. She had me fax her the report from the genetic test. She said they tested all the genes and the only variants I had were the ones listed above which are common and do not cause CF. She said I that it is unlikely the pancreatitis is...

Madmaxx33, I had the full genetic mapping for CFTR, PRSS1, CSTR, CAP1, CASR, SPINK1 which looks for mutations which can cause chronic pancreatitis. The article I referenced in earlier post talks about people who have mutations in CFTR but have low or intermediate sweat tests but they also...

I used oregano oil on my son's feet (per the suggestion of his nutritionist) for digestive problems when he was younger. It worked great. Recently, I started using the essential oil, lavender. I might try the lemongrass too. I found the lavender and lemongrass at Aura Cacia. I have no...

Madmax33, I am sorry you are having so many problems with getting a diagnosis and getting the doctors to treat your health issues in a timely manner. I am 47 years old and I have not been diagnosed with CF but I have chronic pancreatitis with no lung involvement. The doctors do not know...

Bill, Thanks for your reply. I do not know how many mutations were checked in the test I had done but I think it was equivalent to the Ambry Amplified. I saw a medical geneticist before getting that test but since it came back negative, he did not do a post consultation. He just sent the...

I am in my mid-forties and have problems with abdominal pain since I was a teenager. I have just been diagnosed with chronic pancreatitis. I had a genetic CFTR sequencing done with deletions/duplications via aCGH this past summer. The only variations that showed up in the tests were the...