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my boyfriend and i live together as well and when he gets sick i usually sleep on an air mattress in the living room (he offers to sleep elsewhere but it gives me a chance to cuddle w/ my kitties as they're not allowed in our bedroom since he's allergic :)

i had my first, and only so far, embolization in July 2007! it was same experience as erock77 mentioned ... they did conscious sedation ("twilight"), went up thru the femoral artery and found a bronchial artery about the thickness of a pinky finger that was bleeding, they blocked it off and i've...

will be sharing the Amazon link to your book on my Facebook timeline as i hope people will read and share as well :D

(^) HAPPY BIRTHDAY! (^) my 36th was November 14!

the bronch should be able to tell if there's something else down there, i would think about suggesting one be done in case they're missing something ... also, not everyone who has CF cultures Pseudo all of the time! i have cultured it but have also been free of it for over two years now :)

do you get sputum cultures regularly to see what you're culturing and what antibiotics are sensitive/resistant? have you ever had a bronch done to maybe see if there's something being missed thru regular cultures???

i was diagnosed just after birth and i'm now 35 (will be 36 in Nov) ... my FEV1 is mid-40's when i'm at baseline ;)

admission day is by far the worst! you already feel like total crap but can't rest because of the intake: med hx, med orders, more questions, IV insertion, etc, then almost always i have to go what seems like forever w/o a treatment and food until all the orders are in... as far as my worst day...

my mom never kept me from anything as a child w/ CF; i had bronchitis once and admitted only one time in 11 years for pneumonia! i strongly believe that by not being germaphobic, i developed an immunity of sorts to many of the bugs out there! as the normal progression goes, adulthood w/ CF has...

i'm an Emergency Telecommunicator for Fire, EMS and Police! been at it for ten years and love it!!!

i'm sorry to hear when any one of us lose the battle! many prayers for comfort in the memories and peace that he is resting well now...

i must have a more horrible sense of smell than i thought because i just opened my first bottle of AquADEKs (softgels) and don't notice a bad smell!

may i ask ... what is hypotonia?

i am allergic to Ceftaz - it gave me hives!

i've had one embolization thus far (two years ago) and no fever that i remember, but i recall them telling me it wasn't abnormal to run a fever. also, i had very little pain afterward. i had worse issues w/ bronch which, like you, happened the day before embo...

what about kidney? have you ever had kidney stones??? i had one in each kidney at the same time a several years ago and O.M.G. ... first time i'd ever had them, and i first thought it was an abdominal obstruction (never had one of those either so i didn't know the pain of either one), but when i...

i, too, have had experience w/ severe joint pain in all my major joints and it can be pretty debilitating at its worst! ibuprofen helped at first, but after a few bouts of it, ibuprofen nor Naproxen nor diclofenac worked for me; the ONLY medication that gave me relief was Prednisone. as a CF...

wow! i must be in the minority here LOL ... with each job i've had (only four in 16 years), i've always been up front w/ my employers about having CF and have (apparently) been lucky they've not once discriminated or retaliated because of it!

i also watch "Bates Motel" ... i was hoping she wasn't going to be in just the premier episode, but so far she seems to be a supporting character!

i have a road map on my stomach from multiple surgeries at birth for meconium ilieus! they'll never go away, so battle scars ain't a big thing for me ... and my boyfriend loves them! he likes to trace them ;)