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Typically they will send you to a transplant clinic when your FEV1 is consistently 30% or less and you have constant infections that need IVs....which I think is 3 to 4 times a year or more not including the routine clean outs. Once you see a transplant doctor they will give you a score...

I am a real estate agent. The schooling only takes a month. I get to choose my hours and 85% of the work is done over the phone, email, or paper work that is faxed...which means I get to stay at home a lot. Right now I am on IVs and I stayed in my PJs all day. The only work I had today was all...

I have a question....how do y'all do the Vest in the hospital with your port accessed...of course I am assuming you have a port

I have been going to the adult Vanderbilt clinic for 5 years and I love the team. They have a nutritionist, social worker, pharmacist, respiratory therapist on the CF team that you are required to meet with. The head nurse is awesome and is completely on top of everything. She gets your...

That is so great that you have come through your rectal cancer! That is such a blessing! It's also wonderful that you havent slipped too much in lung function either during the waiting period. That is exactly why I am so hesitant right to get a transplant now bc I wonder if I coud have two more...

Thanks for some of the feed back! RytheStunner I really want to do what you have done and stay inactive on the list. Right now that is the plan. I have a new work out schedule and diet in place and I am hoping to regain some lung function or at least keep it stable. CrisDopher I totally...

Hey everyone this is my first post. I go to the Vanderbilt CF clinic and a few months ago they referred me to the Vanderbilt Lung transplant center. I got the call yesterday that they had put me on the transplant list. This confused me because 2 weeks ago they called and said that they were not...