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When I kiss my little girl's feet, they burn my lips because they taste salty.

When I kiss my little girl's feet, they burn my lips because they taste salty.

When I kiss my little girl's feet, they burn my lips because they taste salty.

I call the CF center first and if they don't get back to me in enough time, I call her pediatrician, then I call the CF center back to let them know I called the pediatrician. Usually the CF center gets back to me within 24 hours though.

I call the CF center first and if they don't get back to me in enough time, I call her pediatrician, then I call the CF center back to let them know I called the pediatrician. Usually the CF center gets back to me within 24 hours though.

I call the CF center first and if they don't get back to me in enough time, I call her pediatrician, then I call the CF center back to let them know I called the pediatrician. Usually the CF center gets back to me within 24 hours though.

Our doctor told us that CFers don't really have reflux and that the only reason they use zantac or prevacid is because it helps the enzymes work better. I don't know that I necessarily believe that, but that's what he told us the last time we were there.

Our doctor told us that CFers don't really have reflux and that the only reason they use zantac or prevacid is because it helps the enzymes work better. I don't know that I necessarily believe that, but that's what he told us the last time we were there.

Our doctor told us that CFers don't really have reflux and that the only reason they use zantac or prevacid is because it helps the enzymes work better. <br /> <br />I don't know that I necessarily believe that, but that's what he told us the last time we were there.

Sadie started with adek too and it was so gross, it was difficult getting her to take it and i felt bad giving it to her. Somehow it was backordered when we needed to reorder and got vitamax instead, we have never gone back. We've always put it in her bottle and we haven't had a problem, but...

Sadie started with adek too and it was so gross, it was difficult getting her to take it and i felt bad giving it to her. Somehow it was backordered when we needed to reorder and got vitamax instead, we have never gone back. We've always put it in her bottle and we haven't had a problem, but...

Sadie started with adek too and it was so gross, it was difficult getting her to take it and i felt bad giving it to her. Somehow it was backordered when we needed to reorder and got vitamax instead, we have never gone back. We've always put it in her bottle and we haven't had a problem, but...

We are enrolled in that EFMP thing too, but we're in virginia beach so we go to Portsmouth Naval for Sadie's treatment. On the CFF website they have stats for all the accredited centers. Come to think of it, I have a couple questions I asked when I first got to VA Beach. One was how many CF...

We are enrolled in that EFMP thing too, but we're in virginia beach so we go to Portsmouth Naval for Sadie's treatment. On the CFF website they have stats for all the accredited centers. Come to think of it, I have a couple questions I asked when I first got to VA Beach. One was how many CF...

We are enrolled in that EFMP thing too, but we're in virginia beach so we go to Portsmouth Naval for Sadie's treatment. On the CFF website they have stats for all the accredited centers. <br /> <br />Come to think of it, I have a couple questions I asked when I first got to VA Beach. One was...

We are a military family as well, but we didn't have a choice as to what facility we are seen at. Sorry I can't be of more help. If you don't mind my asking, what branch and where are you pcs-ing to?

We are a military family as well, but we didn't have a choice as to what facility we are seen at. Sorry I can't be of more help. If you don't mind my asking, what branch and where are you pcs-ing to?

We are a military family as well, but we didn't have a choice as to what facility we are seen at. Sorry I can't be of more help. If you don't mind my asking, what branch and where are you pcs-ing to?

I only have limited experience, but we did use Johns Hopkins. Johns Hopkins Children's Hospital (David Rubenstein Child Health Building): I loved them. We saw all the doctors and they are all great. We found out they suspected Sadie had CF on tuesday at the pediatrician's office. She called...

I only have limited experience, but we did use Johns Hopkins. Johns Hopkins Children's Hospital (David Rubenstein Child Health Building): I loved them. We saw all the doctors and they are all great. We found out they suspected Sadie had CF on tuesday at the pediatrician's office. She called...