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  1. K

    CF Diagnositic limbo anyone else?

    My little girl is only 6 but we have been through the same thing for years and doctors all over the country. We have a great one now and they just treat her for CF and it works. The doctors say she needs all CF medications and either way if it is CF or not CF her treatment wouldn't be any...
  2. K

    picc line help

    Have you thought about a port? You can even swim with them.
  3. K

    picc line help

    Have you thought about a port? You can even swim with them.
  4. K

    What is your FEV1 Score?

    My little girl is almost 6 hers are about 98 to 102. Is that good? what do they mean?
  5. K

    What is your FEV1 Score?

    My little girl is almost 6 hers are about 98 to 102. Is that good? what do they mean?
  6. K

    Welcome Ambry Genetics

    My daughter has been getting sick since she was about 4 months old. She has had klebsiella 3 times and pseudomonas 3 times and a few other bugs. She is 5 years old and recently had 2 pneumonia's in the last 2 months. We had the big Ambry test done and it was neg and the sweat test was neg. We...
  7. K

    How do you know if your child just has a cold or is it a bug?

    I wait about 5 days and if she is still junky coughing I take her for a culture. Sometimes it is nothing but most of the time it is a bug. It is expencive to run the test everytime.
  8. K

    How do you know if your child just has a cold or is it a bug?

    I wait about 5 days and if she is still junky coughing I take her for a culture. Sometimes it is nothing but most of the time it is a bug. It is expencive to run the test everytime.
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