Search results

Hey Jenna!! I used to live in the "armpit of the US" -- YUMA, AZ!! It was HOT and yucky!!! My husband was stationed there and we ended up living in Tucson for about 6-7 mo while my daughter was in UMC for MRSA Pneumonia and MRSA Blood Sepsis and also where we found out she had CF! We were told...

Yea im one of those people who's docs said different time frame. I know for her over night feeds we have to give them to her prior to eating and then again after (10 hrs later). I dont think anyone really knows. I wonder if the enzymes REALLY work then!! ;P

Yea im one of those people who's docs said different time frame. I know for her over night feeds we have to give them to her prior to eating and then again after (10 hrs later). I dont think anyone really knows. I wonder if the enzymes REALLY work then!! ;P

Yea im one of those people who's docs said different time frame. I know for her over night feeds we have to give them to her prior to eating and then again after (10 hrs later). I dont think anyone really knows. I wonder if the enzymes REALLY work then!! ;P

Wow! You guys are so awesome!! Im didnt think Id get a response none the less this fast! So Im greatful for that! Mommafirst - Not sure if I posted what two meds she is on for reflux -- Shes on Relgan and omeprazole. And youre right, I definitely do not want to see her go through another big...

Wow! You guys are so awesome!! Im didnt think Id get a response none the less this fast! So Im greatful for that! Mommafirst - Not sure if I posted what two meds she is on for reflux -- Shes on Relgan and omeprazole. And youre right, I definitely do not want to see her go through another big...

Wow! You guys are so awesome!! Im didnt think Id get a response none the less this fast! So Im greatful for that! <br /> <br />Mommafirst - Not sure if I posted what two meds she is on for reflux -- Shes on Relgan and omeprazole. And youre right, I definitely do not want to see her go through...

You know you take care of a CF'r when you know more about their meds then your own...=P

You know you take care of a CF'r when you know more about their meds then your own...=P

You know you take care of a CF'r when you know more about their meds then your own...=P

Im no help when it comes to CF just because I have only dealt with CF (my daughters) for 2 wks at home...otherwise its been at the hospital for 5 months. BUT I did hear if you get honey from ur local, you can use that (on anything and everything) and thats suppose to help you with allergies in...

Im no help when it comes to CF just because I have only dealt with CF (my daughters) for 2 wks at home...otherwise its been at the hospital for 5 months. BUT I did hear if you get honey from ur local, you can use that (on anything and everything) and thats suppose to help you with allergies in...

Im no help when it comes to CF just because I have only dealt with CF (my daughters) for 2 wks at home...otherwise its been at the hospital for 5 months. <br />BUT I did hear if you get honey from ur local, you can use that (on anything and everything) and thats suppose to help you with...

Hey there!! I need some help from you CF families that have possibly been thru this. My daughter was in the hospital for the first 5 months of her life on a respirator and FTT (Failure to thrive) for the first few months. She had an Meconium Ileius and ileostomy repair along with a G-Tube. Ever...

Hey there!! I need some help from you CF families that have possibly been thru this. My daughter was in the hospital for the first 5 months of her life on a respirator and FTT (Failure to thrive) for the first few months. She had an Meconium Ileius and ileostomy repair along with a G-Tube. Ever...

Hey there!! <br />I need some help from you CF families that have possibly been thru this. <br />My daughter was in the hospital for the first 5 months of her life on a respirator and FTT (Failure to thrive) for the first few months. She had an Meconium Ileius and ileostomy repair along with a...

So the first 4.5 months of Kylie's life she was on a respirator. Which means no feeds went in thru her mouth but by IV and now G-Tube. They did a swallow study right before we were released at 5 months old and it came back negative. She can't swallow unless its in the back of her throat and...

So the first 4.5 months of Kylie's life she was on a respirator. Which means no feeds went in thru her mouth but by IV and now G-Tube. They did a swallow study right before we were released at 5 months old and it came back negative. She can't swallow unless its in the back of her throat and...

So the first 4.5 months of Kylie's life she was on a respirator. Which means no feeds went in thru her mouth but by IV and now G-Tube. <br />They did a swallow study right before we were released at 5 months old and it came back negative. She can't swallow unless its in the back of her throat...

In my opinion, Id try to do them an hour prior to bed that way you arent pushing the sleeping schedule and you stick to your guns. My daughter is 6 mo old and does albuterol/dornase and then albuterol/saline 7% the next. Alternating every 4 hours along with pounds. She HATES the saline as well...