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  1. J

    How long did you wait to be seen at CF clinic

    Hi, Martysmom and everyone else - Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He felt that the...
  2. J

    How long did you wait to be seen at CF clinic

    Hi, Martysmom and everyone else - Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He felt that the...
  3. J

    How long did you wait to be seen at CF clinic

    Hi, Martysmom and everyone else - <br /> <br />Thanks for your good wishes. It's looking fairly definitive that my son does NOT have CF. We did the sweat test, which was negative (27 - not even borderline) and talked with the head of the local CF clinic about his genetic test results. He...
  4. J

    How long did you wait to be seen at CF clinic

    Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...
  5. J

    How long did you wait to be seen at CF clinic

    Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...
  6. J

    How long did you wait to be seen at CF clinic

    Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...
  7. J

    How long did you wait to be seen at CF clinic

    Just call me Ms. Sticky Wheel... Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the results of the...
  8. J

    How long did you wait to be seen at CF clinic

    Just call me Ms. Sticky Wheel... <br /> <br />Thanks to all of propping me up with the knowledge that waiting two months to get a sweat test is NOT standard, I made some calls today and got my son's sweat test scheduled for Thursday. Yay! Sounds like his GI doc just hadn't faxed over the...
  9. J

    How long did you wait to be seen at CF clinic

    Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...
  10. J

    How long did you wait to be seen at CF clinic

    Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...
  11. J

    How long did you wait to be seen at CF clinic

    Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...
  12. J

    How long did you wait to be seen at CF clinic

    Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. He does take enzymes, and gained weight immediately. He's never been FTT, but...
  13. J

    How long did you wait to be seen at CF clinic

    Thank you so much for your reponses! I should clarify that his 'inconclusive' Ambry test just meant that they didn't find a definitive conclusion - i.e. 2 mutations. He has one mutation, hence the further testing. <br /> <br />He does take enzymes, and gained weight immediately. He's never...
  14. J

    How long did you wait to be seen at CF clinic

    Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...
  15. J

    How long did you wait to be seen at CF clinic

    Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...
  16. J

    How long did you wait to be seen at CF clinic

    Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...
  17. J

    How long did you wait to be seen at CF clinic

    Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...
  18. J

    How long did you wait to be seen at CF clinic

    Hi, all. We're new here. My 9yo son was diagnosed with pancreatic insufficiency in the fall, so we're trying to find what's causing it. We did a blood test, which was inconclusive for CF, so his doctor referred us to the CF clinic for a sweat test and further testing... and their first...
  19. J

    Welcome Ambry Genetics

    Hi, Steve. Thank you so much for answering such detailed questions! We just got the results of our son's Ambry test, and are unsure of what it means. Our doctor has referred us to the local CF clinic for a sweat test and genetic counseling, but we're impatient! I'm hoping you can give us a...
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