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My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...

My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...

My kids were diagnosed this year they are 11 and 14. Long story. Look up my other posts if your interested. It has been a battle. We are at CHOP now and happy so far. We are with Dr. Rubenstein(pulmonology) and Dr. Mascarehnas(GI). Their nursing staff is great and my son was in for his 1st...

Could you tell me about my two children's mutations? They are 394delTT and L997F. Thank you. Mom of 11 y/o daughter and 14 y/o son with cf dx 2010 mutations 394delTT and L997F

Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...

Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...

Thank you. They are doing somewhat better. My son has been out of the hospital and back at school with some new meds; pulmozyme,more prevacis, and zantac. Our daughter had a near miss with the hospital just as soon as our son got home but phew a close call but she is ok after a lot of cipro, cpt...

Dear Bubblegum, My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic cough with some...

Dear Bubblegum, My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic cough with some...

Dear Bubblegum, <br /> <br /> My 14 year-old son was diagnosed with CF this year after being hospitalized on emergent basis twice this year with pancreatitis. It took several months to get a difinitive diagnosis. He had some borderline issues. He has had some respiratory issues and a chronic...

love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work.

love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work.

love the videos. My 14 yr old liked them. He wants a trio for xmas now. Keep up the good work. <br /> <br />

In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...

In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...

In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...

I do truly understand what you are going through. They give a diagnosis and you are devistated then they take it away, then they are not sure and God knows.In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital...

I do truly understand what you are going through. They give a diagnosis and you are devistated then they take it away, then they are not sure and God knows.In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital...

I do truly understand what you are going through. They give a diagnosis and you are devistated then they take it away, then they are not sure and God knows.In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital...

In our Doctors we trust...At the beginning of this year my 14 y/o son had a series of acute pancreatitis which landed him in the hospital for about 2 months. He missed about the last 3rd of his 8th grade. He has a history of a chronic cough since age 18 mths, relux as an infant until 9 months...