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Hey all I have a question regarding my port. I have a mediport which was placed in Nov of 2000 and I've only had a few problems with it being a hard flush in the last couple years. I can say I rarely get it flushed because I was going in for via every 3-4 months. However I was admitted...

Hi Liza, Thank you so much for the link that you sent that really helped me understand it more. My appointment went smoother than expected, as crappy as I feel my FEV1 did not drop so they sent me home w/ steroids and an antibiotic with directions to take a few days off work, get in more...

Liza, my stepfather is currently in the national guard, I know we have tricare reserve select which I believe is standard rather than prime. I called tricare and all they could tell me was it was a case to case basis and i would need my doctor to send an authorization request of why it is more...

Hi, I was wondering if anyone knew if tricare covers home iv's? I have had tricare for years and am only now wanting to try home iv's over hospitilization because of work and school commitments. Lately i've been having to pay much more than normal for visits and such and was wondering if home...

I take Creon. I've never had a problem getting AquADEKs, SourceCF, ADEK, etc etc, if anything i've only ever had to pay $5. Do you know where I can get this form to send into Creon?

I have a question on vitamins in the insurance regard. Does your insurance pick up your aquadeks or ADEK vitamins? I have tricare and today I went to pick up my multivitamin and it would've cost me $60. However, that is not something I can afford so I couldn't get it, I have a few days left but...

I used to take ADEK call me crazy but I loved the chewable and it's taste. My doctor's stopped prescribing that and switched to SourceCF but since that is not being made any more they put me on Aquadex, I don't know if this is the gel of ADEK or if it's a completely different brand but it's...

Wow, reading these makes me love going to the doctor. As a young teenager I always had long 4-5 hour visits with a "fight" solely because I was that an uncompliant teenager. Now however, my visits usually last around 2-3 hours, I go in and see the nurse practitioner first, she is kinda so-so...

That does seem like it could have been a small mess up on some part. A thing I have always questioned is while I'm on isolation the doctors/nurses/etc must wear gowns/gloves/mask while in my room, and they must put it all on before stepping in to protect me, HOWEVER they do take it all off and...

the smell of passing gas/stools the funny tasting mucus coughing so hard you get phlegm on your clothes/elsewhere coughing so hard you pee just coughing so hard you do anything embarrassing once not long after I had moved in with my boyfriend I really needed a 'clean-out' so about morning 3/4...

This unfortunately happens more often than one would think, I've been told by my doctor that 1 in 4 people walking around at the mall has some form of MRSA. A hospital is the most unsafe-safe place you could be in treating your cystic fibrosis, as parallax as that sounds. The fact that...

I agree with JustaCFmom I've had the eFlow machine for quite a few years, I was very lucky and my insurance/docs helped me and covered the entire cost. I'd definitely recommend it, as I received it solely because I wasn't motivated to take my treatments/have the time and now I'm so thankful for...

JP, though I know I'm late. I was/am in denial about my CF. I was diagnosed at birth (being 3 months premature) and have until this day struggled with taking my meds and treatments regularly. Until I was about 11 or 12 my parents made me take them, but once I got old enough I realized they...

Thank you all so much, I went ahead and told one of my managers that I had complications with my lungs and had a doctors appointment to see a specialist (i didn't disclose that i had CF). I told them that it was a possibility that i would have to take an extended time off of work and they were...

I have recently moved and just started a new job within the last month, i have a doctor's appointment in two weeks time, I have been feeling really sick lately (loss of weight, being cold constantly, stomach pains, etc) and I'm afraid I may be admitted into the hospital. Seeing as it's a new job...

I have a question regarding pain management while in the hospital. About a year and a half ago i switched care facilites due to location, my first doctor had me doing multiple things regarding airway clearance (ippv, ppb, pep, vest) so he had me on a fentanyl bolus before treatments and massages...

I went to Children's Mercy for 6 years. Dr. Black is the BEST doctor I have ever had, along with the entire team (especially the pulmonologists, Marcy, John and Dawn) SO great, they really taught me a lot, not only about my CF but how to maintain it. I also went to the University in Columbia...

I cultured MRSA for the first time when I was 12 (now 19), I've never been able to clear a culture free of MRSA. I almost always also culture E. Coli and Psuedomonis. My usual treatment is Vanc, with Tobramycin or Doxycyline. For me Bactrim never works.

Hi, I'm new here. But I am currently in the hospital and have lost quite a bit of weight over the last 6 months (around 20 lbs) my nutritionist is wanting me to start eating between 3100 and 3600 calories a day. It's very hard for me because I don't get hungry easily and only eat 2 maybe 3 meals...