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Hi, just incase you don't have your results yet, both my children have been diagnosed with pancreatic insufficiency without cystic fibrosis. There are a few medical conditions aside from CF that also have pancreatic insufficiency as a symptom however these are much less common. Let me know if...

Hi, only my daughter has been tested for celiac disease and her results came back negative, however she hasn't had a biopsy done. I initially assumed it would be celiacs's with her bloating, however the doctors seem pretty convinced from her results that she doesn't have it and said that damage...

Hi, thanks for the info. Definitely got some more questions for our doctors now, especially to see how extensive the genetic screening was.

I haven't seen the results from the genetic testing or the sweat test, have only been told from the doctor that they were normal. Her growth slowed down once solids were introduced at 5-6mths old, and she had started to complain more frequently of stomach pains and she can get extremely bloated...

Hi Julie, My daughters faecal elastase was 68 and then repeat test was 78 and my son's first test was 74 and we are waiting for the results of his second test. No other pancreatic function tests have been done but my daughter did have her vitamin levels tested and all her fat-soluble vitamins...

Both children don't have any loose stools and only my daughter has occasional stomach pain. I will try to convince the Doctor to do a full CF screening but I am not even sure whether our labs are capable of it, genetic testing isn't huge over here yet. He is more inclined to think it is SDS even...

Hi, Thanks for your replies. Unfortunately I am in New Zealand and CF Clinics/Centres don't exist. My daughter had 3 sweat tests through our local hospital with them only successfully collecting enough sweat from the final test which came back negative. And she has also had some genetic...

Hi, I apologise for intruding on this site but I was hoping someone in a similar situation may see my post. I have a 5 y.o daughter who has recently been diagnosed with pancreatic insufficiency and is currently on Creon and Vitabdeck. All her CF tests and SDS tests have come back negative and...