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  1. S

    Transplant and emotions

    There are a lot of things about the transplant experience that can only be told by those who actually went through it and even though you prepare yourself no one is ever really ready. When I started my transplant process I had been out of college for almost 2 years without ever having been able...
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    post transplant lifestyle

    Yeah they said I'll probably have to still use Cayston or Tobi. Did you ever have to do any other treatment..xopenex? pulmozyme? even the first few months or when you got sick after transplant? How come you can't eat fish or fast food...why do you take in less calories? Sorry Im like...
  3. S

    post transplant lifestyle

    Yeah they said I'll probably have to still use Cayston or Tobi. Did you ever have to do any other treatment..xopenex? pulmozyme? even the first few months or when you got sick after transplant? How come you can't eat fish or fast food...why do you take in less calories? Sorry Im like...
  4. S

    post transplant lifestyle

    I'm going to be listed soon (hopefully) and I feel like I have been getting some mixed information about treatments after transplant. Sometimes they say I will still do them and other times they say only initially. Did anyone or does anyone still do their breathing treatments and use this vest...
  5. S

    post transplant lifestyle

    I'm going to be listed soon (hopefully) and I feel like I have been getting some mixed information about treatments after transplant. Sometimes they say I will still do them and other times they say only initially. Did anyone or does anyone still do their breathing treatments and use this vest...
  6. S

    pre-trans quality of life

    I'm new to this site but I have come on here recently and have been reading a lot of posts about transplant and its all been very helpful. Ive been seeing a transplant team since January 2011 and have been evaluated now I guess its just a waiting game. This past summer I was on IV meds and...
  7. S

    pre-trans quality of life

    I'm new to this site but I have come on here recently and have been reading a lot of posts about transplant and its all been very helpful. Ive been seeing a transplant team since January 2011 and have been evaluated now I guess its just a waiting game. This past summer I was on IV meds and...
  8. S

    pre-trans quality of life

    I'm new to this site but I have come on here recently and have been reading a lot of posts about transplant and its all been very helpful. Ive been seeing a transplant team since January 2011 and have been evaluated now I guess its just a waiting game. <br /> <br />This past summer I was on...
  9. S

    Needs to gain weight

    I would definitely ask your doctor about an appetite stimulant. I personall have always had trouble gaining and maintaining weight. I have a g-tube so that helps. After struggling for two years to even put on 5 lbs I tried Megace ES. It come in a liquid form. In 3 months I gained 25 pounds...
  10. S

    Needs to gain weight

    I would definitely ask your doctor about an appetite stimulant. I personall have always had trouble gaining and maintaining weight. I have a g-tube so that helps. After struggling for two years to even put on 5 lbs I tried Megace ES. It come in a liquid form. In 3 months I gained 25 pounds...
  11. S

    Needs to gain weight

    I would definitely ask your doctor about an appetite stimulant. I personall have always had trouble gaining and maintaining weight. I have a g-tube so that helps. After struggling for two years to even put on 5 lbs I tried Megace ES. It come in a liquid form. In 3 months I gained 25 pounds...
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