Search results

Hi, I wanted to write to get some fed back. My son, Noah, 5 months old w/cf has recently tested positive with pseudomonas when we took him to be treated his doc also ordered a swallow test, which they found he was spraying a few drops back into his lungs as he eats. Phalasgia(sp?) is the name...

Hi, I wanted to write to get some fed back. My son, Noah, 5 months old w/cf has recently tested positive with pseudomonas when we took him to be treated his doc also ordered a swallow test, which they found he was spraying a few drops back into his lungs as he eats. Phalasgia(sp?) is the name...

Thank you for your response. Your baby has a great weight! You are correct about the quantity of enzymes depending on the weight. As for the stool, I have no idea. No one has ever looked at his stool before. Not even when we were in the hospital for a few days. Thanks again!<img...

My 4 month cf/son has been taking Ultrese enzymes since he was 3 weeks old. He is 4 months and 16 lbs., his dietician asked me to go from 1/2 cap per feeding to 1 cap per feeding. I tried and he started throwing up after evry feeding so now we are back to 1/2 cap per feeding. Now he is...

For the past 2 months my 4 month/cf son seems gurgerly sounding in his throat (mostly after he eats). The docs say it is not in his chest. Until he coughs or clears his throat it stays there. We keep him in an upright position for half an hour after he eats or he would spit up. I normally...

My cf/son (4 months old) has had sinus congestion for a week now. Per advise of my clinic and his primary peditrican, saline drops help clear it up. A cool mist humdifier at night has also been recommended which I have seen some small improvement from. The primary peditrican said he has a...

My cf son is 4 months. We are in transition of moving from Columbus Ohio to Cleveland Ohio. Our son's med records are already transfered to his new clinic in Akron Ohio. Anyone have experience with Akron's clinic at Childrens Hospital OR Clevelands Rainbow Hospital? Thanks for any help.

Hi Teri- In hard times that I have experienced and have suffered hardship of some kind, I have stayed focus on what my beliefs prove true everytime. I am not sure what your faith is with the Big Man upstairs, but I know first hand He never gives us more than we can handle. Finding your faith...

Hi Crista- I understand you becoming so overwhelmed. It is so hard to helplessly watch our children suffer. Keep in mind that you are helping him with encouraging and loving words. I am so sorry to hear that your son is having such a hard time. Did you try posting this on the young adults...

hi, we are new to CF. we have a 3 month old son and we use chest therapy for now but was curious at what age or weight is good for starting the vest for his therapies. He is really big for his age and quickly out growing his 3 to 6 month old clothes. If anyone out there can give us advice...

Hi I'm new to the forum but what you said sounds kind of alarming. I am a mother of a three month old son with CF. You are not the only one struggling with this but what you said about your CF clinic and pediatrician being "not concerned" is sad. Is there another clinic you can go to because...