I'm sorry I forgot to mention...I live on the West Coast, Fresno Ca, about three hours from San Francisco and LA. My middle daughter is an established patient at Lucille Packard (Stanford) due to a tethered spinal cord. We do have a Children's Hospital near us but they only have one specialist...
Hello,
I am a 40 yr old female known carrier of the CF gene mutation. Two years ago my pancreas failed and I have been enzyme dependent ever since, with worsening symptoms. My liver is now " moderately " damaged (by fatty liver disease) and I have been unable to find a physician who knows...
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