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Fantastic Post ! I pray one day My daughter will be like you !! your right not enough people really get out there and make Cf known. I have raised money for cf data in adelaide , raised money for the ward. It's hard society is so small minded and just dont seem to care . Cancer Fundraising has...

Thanks to everyone that has replied , it's nice to be able to talk without my daughter getting angry (cf thing ). i will look more into glyco-nutrients but i must say I'm a bit skeptical ..... Dr's tell me it's normal teenage years and they have said it will get harder before she wakes up ...

Thanks for your reply Liza. I mean let's face it if it is supposed to help with the essential sugar's that are lacking in our body's Roche or other drug companys would be using it . It just annoy's me that some people can thrive on other's emotions and use it to there money making schemes. Take...

Thanks Di for the reply , it is supposed to be glyco-nutrients ? But the company is called manatech. Just another Question for you I cee you carry cepacia ------- My daughter was mrsa positive for 6 year's . She was isolated each admission obviously --- Now she has been cleared for just over...

Hi Everyone , I need some advise please --- I have a daughter with CF just turning 13 this year , her lung capacity is 63%. Now I have this person trying to seel me a product called "manatech" essential sugar's they say are needed. 300$ a month ! Money does not bother me if I can try to improve...