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  1. U

    Debating whether to get a port

    LOL! You guys are funny. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did have the surgery Monday, so I don't want people poking it quite yet because I'm still a little sore. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My Mom and sister are visiting me from...
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    Debating whether to get a port

    Thanks for all the info guys. It was really helpful. I am now the new receipant of a port. Still a little nervous about it all, especially having an 8 month son and all. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I think I will grow to enjoy it as much as the rest of...
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    I just need help in general :)

    Got to see my new doctor yesterday! I think I'm gonna like him. He was asking all the right questions and making all the right suggestions that tell me he's familiar with this sort of thing. I told him I felt like I needed to be on some strong I.V. antibiotics and he said the magic words: "Well...
  4. U

    Debating whether to get a port

    I saw my doctor yesterday and he wanted to put my on home I.V.s. They try to put the PICC in two different ways, and the end result was 5 holes in my arm and no I.V. I need the antibiotics, and it's up for debate now whether when I go back in Monday whether to try again to put the PICC in or...
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    I just need help in general :)

    Hey,Well, what's happened thus far is the day of my follow up appt. with the first doctor I was referred to I got a phone call basically telling me that since I was authorized to see a different pulmonologist I was no longer authorized to go see the first doctor. She said she would try to call...
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    College with CF

    I didn't actually do the dorm thing, but some additional advice I can give you through personal experience is don't work yourself too hard to pay for college. I commuted to a community college for a year and half and my parents couldn't help pay. On top of that I had to be a full time student to...
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    I just need help in general :)

    Hey all,Just got a call today finally saying the my referral went through, BUT when I called to schedule an appointment they said I had one scheduled for Sept. 27th!!!! *sigh* Out of the frying pan into the fire. I asked if there was anyway I could be seen sooner and she said I'd have to talk to...
  8. U

    new pseudomonas culture

    I need to start going where some of you guys do. I wish they had put me to sleep all the times they've given me a PICC. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  9. U

    I just need help in general :)

    Liza and Allimarie,Thanks for the tips. I've been kicking back the past couple of days so I haven't made any progress as of yet. I've also been kind of waiting to see if the Naval Clinic calls me back to tell me whether they gave the message to my doctor and what he is or isn't going to do. I...
  10. U

    The vest

    IPV stands for Impulsator Percussionator Ventilator. It works like the vest in that it pulsates, but instead of it pulsing on the outside it actually pulsates inside. It's basically a nebulizer with tubes hooked up to a machine like the vest. When you push the trigger on the neb it pulsates the...
  11. U

    I just need help in general :)

    Hey Liza,Two teens with CF and living the military life?? My hat goes off to you too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> You and your husband must be two really strong individuals.Well, I've only been married for about a year and half now, and we just got moved to his...
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    Your opinion on the term "cystic" or"Cysti" is it offensive to you?

    RE:Your opinion on the term "cystic" or"Cysti" is it offensive to you? I also pretty much agree with everyone on this. Why should we be offended?? Do you really want to say "Cystic Fibrosis patient" all the time?? You usually don't here people calling an AIDS patient as an Acquired Immune...
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    The vest

    For me the vest worked really well at first. For what ever reason as time went by it didn't work for me as well. Now I use the IPV and I've been healthier than I have in years. I was being hospitalized every three months, and now it's been over 7 since I was last in. You're not as free to do...
  14. U

    Women only question

    So the patch helps some, and some pills...anyone heard anything about the Depo shot???
  15. U

    I just need help in general :)

    I'm a 21 yr old CF patient with a 7 month old boy, and brand new to the forum. I'm married to a Navy sailor so I have Tricare Prime as my medical insurance. So far trying to get what I need when I need it has been a bit of a struggle. I was lucky when my husband was stationed in Charleston in...
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