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I just got a copy of my 7 year old son's sputum culture report. His doctor is out of town, but was told they would watch it but no treatment now. My question is what does it mean? Heavy mixed respiratory flora at 3 days. Positive at 3 days. Org 1: Light Staphlococcus Aureus. Then it gives...

My seven year old son (diagnosed in Feb) just cultured mild staph after having symptoms with what was apparently a mucus plug. I was a little surprized that he cultured anything. He has, in the past, cultured h influenza and strep with minimal symptoms (bronchoscopy) and had 3 "pneumonias" that...

Thank you to everyone who posted. His PFT's rose back up over 100%. Apparently, he had a mucus plug that he passed over the weekend. He had one day where he coughed quite a bit. That and the vest must have done it.

This is all new to us in that my 7 year old son was recently diagnosed with CF (Feb of this year). I posted a few days ago about my son having pain in his lower left lung and back when doing his vest. I took him to his ped on Friday and they ran PFT's. His FVC went from 103% to 89% and his FEV...

Thank you so much for your responses. I am keeping an eye out on this. Hard to keep up on so much and try to lead a "normal" life for him.

Thanks! Do you know what causes the pain? Is it a sign of infection? He said he felt better by the end of the treatment, but had to stop it several times in the beginning. He will do almost anything to watch TV so I don't think he was faking the pain.

Hi, My 7 year old son, who usually enjoys doing his vest treatment (chance to watch TV) compained today and cried that it really hurts him when it inflates and then when it runs its cycle. He was diagnosed in Feb. of this year and only been doing treatments since April after 4 lung infections in...

Please know that you have been in my thoughts and prayers since I have read your post. I pray that God gives you the strength to get through this. I am so glad that he had a chance to become a full part of your wonderful family before he had to go home to God. Remember the angles will hold...

Please know that you have been in my thoughts and prayers since I have read your post. I pray that God gives you the strength to get through this. I am so glad that he had a chance to become a full part of your wonderful family before he had to go home to God. Remember the angles will hold...

8 yo with pancreatic insufficiency, fighting for genetic sequencing Julie, My sone was 6 when he became PI. We were told the same thing, just short of turning 7. Our Pulm did not believe, eventhough he was following "as" because he had no lung involvement. This was August. By January they...

Hi, My son Justin had SEVERE laryngomalacia as a baby. He had 2 surgeries by 12 weeks to open up his airways. His would colapse and cause apnea with O2 drops and bradacardia all at the same time. He did outgrow it, although when he had his last bronchoscopy in March (7 1/2 years old) they...

Hi, My son Justin had SEVERE laryngomalacia as a baby. He had 2 surgeries by 12 weeks to open up his airways. His would colapse and cause apnea with O2 drops and bradacardia all at the same time. He did outgrow it, although when he had his last bronchoscopy in March (7 1/2 years old) they...

I am so sorry to hear this. My prayers are with you and your family.

I am so sorry to hear this. My prayers are with you and your family.

My prayers are with you during your wait.

My prayers are with you during your wait.

8 yo with pancreatic insufficiency, fighting for genetic sequencing Hi, I am not one to ususally "push" the doctors too hard, for fear of "loosing" what we have. I would, however, demand the results. We were in the "followed as if" area because of 1 mutation and poly T, and negative sweat...

Hi, We are getting really involved too. This is new to us, just diagnosed this year, but I am on the Galla committee and my husband is doing pro bono legislative work as well as working with the golf outing. I have co-hosted our school's main fundraiser for the past several years. My idea...

Hi, We are getting really involved too. This is new to us, just diagnosed this year, but I am on the Galla committee and my husband is doing pro bono legislative work as well as working with the golf outing. I have co-hosted our school's main fundraiser for the past several years. My idea...

Hi, Have they done a endoscopy/colonoscopy yet? If so, did they check the eosinophil levels? Sounds like it could possibly be an eosinophilic disorder. From what I have been told, when the GI system is overloaded, either from inflamation, infection, pancreatic issues or any stress, this is...